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- ABPA_Aspergillus
- accompanying diseases
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Topics
- SPLUNC1 protein
- Hello Could you give some information concerning SPLUNC1 and its effects in cystic fibrosis? Do we know well this protein or is it only the beginning of the research? Are there studies planned ? Thanks for your answer.
- 14.11.2012
- Nonsense mutations
- Hello, I am a mother of a child who has a nonsense mutation and I would like to know whether, apart from Ataluren, there were other current researchs on these mutations. Thank you in advance.
- 13.11.2012
- Health and wellness
- What are ways to make life easier for patients with cystic fibrosis?
- 13.11.2012
- Protective isolation or contact isolation ?
- Hello, Currently studying second year of nursing school, I have completed an internship in pediatrics where patients with cystic fibrosis were present due to exacerbation. I noticed that they were isolated and I can not find on any official website (HAS for example) what the kind of isolation is: is it a protective isolation or a contact isolation? It was a contact isolation when the patient had antibiotic-resistant bacteria. If the patient does not have MRSA, is it a contact isolation anyway? Why?
- 13.11.2012
- Pseudomonas vaccine
- Hello, I am the mother of a seven and half months old CF baby. Today my baby is well. I have heard about clinical trials for Pseudomonas vaccine. What is the development stage? What are the results about these trials? In advance thank.
- 12.11.2012
- Combination therapy: Kalydeco+VX809
- Following recent results presented at the NACFC in Orlando, it seems that the association Kalydeco+VX809 is promising. Will the drug be commercially available in 2015/2016?
- 12.11.2012
- Risk for a newborn
- I have CF and I am chronically colonized with Pseudomonas aeruginosa. Can I take a newborn baby in my harms without risks for him?
- 12.11.2012
- Multiple sweat tests
- My son just had two sweat test done. Both were in the high normal range. 34 and 34. They are concerned because they don't see this happen frequently and want me Full bore with more testing. Any advice?
- 12.11.2012
- Risk of spreading MRSA
- Hi, I've been diagnosed culturing MRSA and I want to ask about the risk of transmitting it to my girlfriend (non cf) through kissing and other intimate contact. Shall I stop those things or it's not so possible for healthy non cf people to get MRSA in their lungs? What shall I pay attention to to prevent transmitting MRSA to her? Thanks a lot!
- 12.11.2012
- CF Diagnosis
- Has a CF diagnosis from the heel prick test ever been wrong? Both parents did have gene mutations and same faulty genes detected in child. A sweat test has never been carried out and from 3 weeks all the usual preventative treatment has been done. To date 4 years down the line nothing has ever been cultured or no other symptoms of CF appeared. I do appreciate it is highly unlikely the diagnosis is not correct and symptoms can develop later in life but this is just something I would like to know. A sweat test is going to be done soon.
- 12.11.2012
