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Tags
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- Carbapenems
- On the internet I read articles highlighting the resistance of Pseudomonas aeruginosa against carbapenems. Still they are used in patients with cystic fibrosis to reduce the Pseudomonas aeruginosa (like they do with my daughter). Could you say something meaningful about this?
- 05.11.2012
- simia
- I would like to know what influence has the bacteria simia on cystic fibrosis
- 05.11.2012
- CF related Liver disease, Lycopene and Vitamin E
- Dear Expert, I'm a father to a 7years old boy with CF. Recently, a CF related Liver disease was diagnosed (by ultrasound and elevated liver enzymes in the blood). It was also discovered that his Vitamin E level is higher than normal 33mg/L. Can the high level of Vitamin E affect the Liver disease (for good or for bad)? In addition he has being received a daily dose of 15mg of lycopene. Can the lycopene affect the liver disease? After stopping the lycopene administration a moderate decrease in the liver enzymes in the blood was monitored. Thank you in advance.
- 30.10.2012
- p.R709X heterozygous
- Results from gene sequencing and amplification for our child showed one mutation: p.R709X. No other mutations, or variants of unknown significance or gross deletions or duplications were noted. What phenotypic expression does the heterozygosity for p.R709X bring about? Is my child a carrier.
- 30.10.2012
- Flu vaccine as nasal spray?
- Hello, We are getting our daughter (CF, turning four in two months) a flu shot every year in the fall. Yesterday the paediatrician informed me about a new vaccine for children that is applied like a nasal spray. The advantage is that children can be spared the pain of the injection. There are a few sources on the internet where one can read that this kind of vaccine can possibly lead to facial paralysis that has occurred after spraying. [Translator’s note: a link to a German website provided in the original question was not included in the translation.] I am now very confused about this new kind of vaccination and would like to hear an expert opinion on it. Do your recommend this new vaccine as well, or are you leaning towards the conventional vaccination method (an injection is no problem for our daughter). I look forward to your assessment. Many thanks.
- 29.10.2012
- Genetics
- Can the type of TG repeat in IVS85T be determined by a blood test? Many thanks.
- 29.10.2012
- Genetics IVS8T5 - Delta F 508
- Which treatment options exist for this specific genetic situation? And can one reckon with the development of specific drugs? Kind regards.
- 29.10.2012
- Working with clay at day care allowed with CF?
- Hello, In our daughter’s (3 years old, CF) day care, a corner will be set up where the children can work with clay by themselves. Since clay has to be kept humid, I am now wondering whether this is suited for her. Do you see any objections concerning germ formation, particularly of PA? Many thanks.
- 29.10.2012
- Coconut oil
- Hello, I heard that coconut oil is particularly healthy, even against fungi, bacteria, etc. As such, wouldn’t it be suited for people with CF? Are there any concerns about cholesterol, as coconut oil is supposed to increase the cholesterol level? Would it be advisable to substitute coconut oil for olive oil, which we mostly use (the virgin variant of both)? Many thanks for your answer.
- 29.10.2012
- Floor drain below the sink
- Dear expert team, My son has CF. In the bathroom in his school, directly under the sink where people stand when washing hands, there is a drain in the floor (much like the ones often found in public showers). One can see that there is always water standing in this drain (which must be rather “old,” since new water will only be flushed in when the floor is cleaned). I am worried that my son, who is standing right above the drain when washing his hands, could inhale some aerosols that could rise when water from the tap flows into the sink and the drainage system below, and that this could ultimately lead to a colonization of his lungs with Pseudomonas. How high do you estimate the health risk? Many thanks for your answer and kind regards.
- 29.10.2012
