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Tags
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
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- reproduction
- research
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- swine flu_novel influenza
- transplantation
- travelling
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- ventilation
Topics
- disinfecting toilet
- Hello, First of all I want to thank you for your answers so useful. My 2 year old daughter is potty trained since a few weeks and I'm wondering what you recommend to disinfect the toilet outside home. It seems to me that all disinfectants (wipes, spray) should be applied several minutes to be effective. What is your advice? Thank you in advance
- 08.10.2012
- Soda streamer
- Hello, are there any objections to using a soda streamer when having CF? Thank you.
- 08.10.2012
- Mutation delta F508 and L227R
- Hello my son (3 years) has these two mutations, but I can not find anything on the L227R. Can you tell me more, particularly its class? Do you think the new treatments that are being developed like VX770 will bring something in his case? Thank you very much
- 08.10.2012
- The expected level of illness
- Dear reader, My husband and I are carriers of the CF gene. It concerns Delta F508 and N1303K. What can you say about the health of our future child if the child carries both mutations and has CF in that case? (we know that the chances are 25% in case of natural conception) I look forward to your answer. Sincerely, L.
- 25.09.2012
- worried mother
- My 5 year old son, already had 30 treatments with antibiotics because of repeated airway infections: upper as well as lower airways. A sweat test was done. The result was 45. The test had to be repeated; the result of the second test was 32. The upper limit of normal is 30. Still our pediatricion stated this was OK, but why is the upper limit of normal then 30?? My son thus had a borderline result tiwce. He also uses Macrogol 10 to 20 mg per day. Otherwise he cannot go to the toilet. I am really worried; can someone tell me what to do. My son coughs terrribly and is sick more or less every 6 weeks. Who has useful advice?
- 25.09.2012
- Detection kit for Pseudomonas aeruginosa
- Hello, The swimming pool, lakes, rivers cause every time for parents fear (Pseudomonas aeruginosa infection). Is there a kit for rapid detection of this bacteria? This would allow us to test several waters in the environment and allow us to better assess the risk for our children. We could imagine that it would be interesting to test pool water several times under several conditions (spring, hot weather, when there are many people, ...). Many parents would agree to invest in equipment in order to perform these tests themselves! What equipment is necessary? Wouldn't it be interesting that all tests on waters could be published on a website with conditions in which they were taken. In this way it would allow us to have better feelings. Thank you.
- 25.09.2012
- Feeding difficulties
- Hello, my daughter is 22 months and she is in full opposition to food. If we listened to her, she would eat only yogurt, stewed fruit or bottles of milk. What should I do? Let her eat what she wants? Go to bed without eating, is it dangerous for her? We are quite worried. In addition, she has to take Creon with the food and she refuses to swallow it. I do not know what to do. Cordially.
- 25.09.2012
- Germs in cistern water
- Hello, my adult daughter (CF) lives in her own home but she also stays at our home frequently, especially to get some fresh air and sun in the garden. Our neighbour waters his garden with cistern water. Yesterday in the evening I noticed a disgusting smell like liquid manure. The water has obviously collapsed by bacterial contamination. To what extent can the water which is sprayed in my neighbour's garden could be dangerous for my daughter? I would like to inform my neighbour about a possible danger and would like to give the right arguments. He has two little children himself (5 years; one week!). Many thanks.
- 20.09.2012
- Appearance of cystic fibrosis
- My uncle is 83 years old and only now he was diagnosed with cystic fibrosis. I cannot imagine that because I read that this disease is congenital. Is it possible, though, that this diagnosis is correct? Many thanks N. H.
- 20.09.2012
- Train ride to Austria
- Dear expert team, I am planning to go to Austria on vacation by high-speed train shortly and am worried that I might not tolerate the air conditioning on the train. Is there any danger concerning the temperature regulation on the train for me as a CF patient? (Ca. 6 hours on the train.) You have written a lot of interesting things about air conditioning in cars or on planes, but I am not sure about trains. Kind regards.
- 20.09.2012
