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Topics
- Mucoclear® (7% hypertonic saline) and physiotherapy
- Is it possible to perform physiotherapy immediately after a nebulization of Mucoclear® (7% hypertonic saline) or do we have to wait a longer time for an optimal effect of this Mucoclear ?
- 11.09.2012
- Sweat test 51 - mutation I148T
- I have a 16 months old girl with low weight. We have a diagnosis of gastro-esophageal reflux disease since she was 4 months old without vomiting. We did a sweat test in a Thessaloniki hospital with sufficient quantity of sweat and it was borderline with a value of 51. The genetic analysis for 36 mutations (75%) showed heterozygousity for the I148T mutation.The child has never presented any pulmonary problems and her clinical picture in general is very good. We have sent a blood sample to be checked for other mutations and I am really worried. Is it possible for the baby to suffer from CF?
- 10.09.2012
- Risks and infection control recommendations at the hairdressing salon
- Hello, are there any infection control recommendations at the hairdressing salon? Should we provide recommendations to the hairdresser? Thank you
- 10.09.2012
- Fertility
- Hello, My son (27 months) carries DF508 and G542X mutations. He is doing well, we make physiotherapy 2 times a day, take vitamins, CREON, salts, etc ... Is there the possibility that his vas deferens are well developed? Are there any ongoing studies about fertility in CF patients? Thank you for your answers.
- 24.08.2012
- Negative amniocentesis results - positive sweat test
- During my pregnancy the results showed that my baby would be a carrier (heterozygote) - 85% checked. My baby is now 7 months old and the sweat test was positive for CF? Is this possible and in which cases?
- 24.08.2012
- fecal elastase
- I would like to ask if any special preperation is necessary in order to examine the fecal elastase in a child? Is it a necessary test in a child with negative sweat test, but with low weight and height and with bronchial asthma? The mother is negative for CF mutations.
- 24.08.2012
- Rhizarthrosis_2
- Hello, many thanks for your informative answer, which has already helped me. I am in my late forties. An X-ray has been made which says "rhizartrosis left, subluxation in the thumb saddle joint with joint space narrowing. MTP joints inconspicuous." Kind regards
- 24.08.2012
- Bronchitol®(mannitol) and ABPA
- Hello! I have CF and would like to get a prescription for Bronchitol®(mannitol) in addition to my other drugs. Currently, however, I am being treated with corticosteroids and antimycotics against ABPA. My question: is there any experience with or contradindication for using mannitol in this case? Could the sugar alcohol actually serve as "food" for the fungus in the lungs? Many thanks!
- 24.08.2012
- Corruption of sweat test results possible?
- Hello, Is it possible that the sodium chloride value in a sweat test gets compromised 1. by cortisone and 2. by food (a lot of salt sticks)? After our first test, the value was at 62 mmol/l sodium chloride content. According to the hospital, the threshold is at 60-80 mmol/l. Our son has been inhaling a spray containing cortisone for four weeks. In addition, two weeks ago an ointment containing cortisone was applied.
- 16.08.2012
- Pseudomonas, part 1 & 2
- My daughter is four years old and has CF with the n1303k mutation. Despite her bad condition, the diagnosis was made only a year ago. We are at a CF clinic. Two weeks ago we went for a check-up and were told that if a swab showed a germ, I would be notified. I used to call myself, but the nurse was unfriendly on the phone and told me I should not get in touch and that they would call if anything comes up. This time I did not call myself and nobody called me. By chance, because my daughter was unwell on the weekend, I called to ask what to do and also about the swab. The answer, which I did not know about before, was that my daughter has pseudomonas. She was prescribed Ciprobay®(Ciprofloxacin) 5% juice twice a day and Tobi®(Tobramycin) 300 mg twice a day for inhalation. ---- [Editor’s note: another question, “Pseudomonas 2,” was asked shortly afterwards. We are including the text of that question below for reasons of clarity.] My question was: concerning pseudomonas, how can we get rid of it and what do we have to reckon with in case we can not get rid of it? I am looking for a CF clinic and would like to know which one you could recommend. Thanks for your help.
- 16.08.2012
