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- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
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- asthma
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- drugs under development_genetic therapy
- ENT
- general aspects
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- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
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Topics
- recovery of rainwater
- Hello, My three year old child has CF and has already been contaminated by the P. aeruginosa. In my job, my accommodation is allocated. My accommodation is new (not yet delivered, but on the way). But I am a little concerned: there is a huge rainwater tank which feeds an outside faucet and toilet. (No possibility to modify the installation). Should I deny this housing or do you think that the risk of contamination is low? (Subject not to have extended aerosol in the toilet, of course). Thank you for the answer and for your answers in general!
- 11.06.2012
- Mutation 2789+5G A
- Hello, My two year old son has this mutation, coupled with deltaF508. What can you tell me about this association? Thanking you,
- 11.06.2012
- Sand box
- I often read that a sand box is full of bacteria. Is a sand box more dangerous to a child with CF than a child without CF? A worried mother
- 11.06.2012
- outdoor trampoline
- Hello, We have the project to buy a trampoline for my daughter who has cystic fibrosis. I have a question about the fact that it is outside, since too large for the interior. With rain water that can get stuck in the walls of protection ... is it a problem because of the Pseudomonas aeruginosa? Thank you for your understanding
- 05.06.2012
- Cystic Fibrosis
- I would like to know whether CF can already be diagnosed when the mother is still pregnant.
- 05.06.2012
- Cystic Fibrosis-microorganisms
- Dear madam/sir, I would like to know which organisms are present when somebody suffers from cystic fibrosis. Thank you!
- 05.06.2012
- CF disease
- Can one live longer with CF?
- 05.06.2012
- Reflux
- How come reflux is such a common thing in people with CF?
- 05.06.2012
- Infertility in females
- Are there percentages known about how common decreased fertility is in women with a mild form of CF?
- 05.06.2012
- Mutation-specific treatment options
- Dear expert team, my son is heterozygous IVS8-2A>C (intron 8) and F508del (exon 10). According to the CF clinic, he has had a mild course of the disease and is in very good shape. Which therapy forms (mutation-specific) are options for this very rare heterozygosity? I assume research mainly focuses on more common mutations? Many thanks for your answer!
- 05.06.2012








