Topics

Motilium® 10 mg tablets
Dear expert team, I (40 years old) have adult CF an suffer from reflux esophagitis as well as small axial hiatal hernia, according to the latest gastrointestinal exam. I have been taking proton pump inhibitors for years (esomeprazole; Pantozol®/pantoprazole; agopton 30mg; earlier also Nexium-mups®/esomeprazole magnesium trihydrate, not prescribed anymore). Despite taking these drugs, I currently have strong reflux of food and constant eructation. My general practitioner would additionally like to try 3x1 Motilium®/domperidone tablets. Can these two drugs be taken at the same time? What else could I do? Kind regards.
15.05.2012
R117P
Can you give me more info on the mutation of my son: R117P THANK YOU
15.05.2012
cf
Hi, I would like to ask you regarding my daughter with mix form of cystic fibrosis. Is it possible that they will have healthy children? Thank you for your response.
15.05.2012
Mutation n1303k
My 3-year-old daughter has no germs, health condition well, drugs inhalation 6% NaCl with 5 drops Sultanol® (Salbutamol), UDC®250 (Ursodeoxycholic acid) 2x1 capsule, Kreon® (Pancreatin), Vigantoletten® (Cholecalciferol). Physiotherapy regularly. I would like to know if there is hope in future to treat this mutation, e.g. ataluren would that be relevant for us? Thank you for answering. [The original question was also asked in telegraphic style.]
15.05.2012
Mutation w1282x
Hello, My two months old son was diagnosed a month ago. The first mutation is W1282X, included in the so-called severe mutations, type 1. The second has not yet been found, it is apparently quite rare. I have two questions relative to this: does W1282X necessarily give severe symptoms (my son is already taking Creon for his pancreas does not produce enough enzymes)? Are very rare mutations moderate or can they be severe? Thank you in advance
15.05.2012
Ataluren trial for classe I mutation
Hello and thank you for your site ... Our 12 year old son is heterozygous for the CFTR mutation: deltaF508/11717-1GtoA. Reading this question in English on your site, here is the link: http://ecorn-cf.eu/index.php?id=32&no_cache=1&L=8&tx_expertadvice_pi1[showitem]=3182&tx_expertadvice_pi1[search]= I understand that a study for mutations belonging to class I, but not ending with an X, would take place this summer. Am I right? If so, how should it be organized? Would the mutation 1717-1GtoA be involved? In advance thank you very much for your reply. And thank you for the time you give for patients and their families. Best regards M.
15.05.2012
p.W1204X Mutation
Hello, I wanted to know if the mutation carried by my daughter, the p.W1204X could possibly benefit from the drug that would result from project ataluren?
15.05.2012
P. aeruginosa
First of all, thank you for having created this site and that we can ask questions that we don't always dare to ask when visiting the CF centre. My question is about Pseudomonas aeruginosa, is it transmitted through saliva? Is it more "dangerous" for a child than for an adult? And does everyone catch it at least once? thank you for your answers
15.05.2012
Sick parent and measures
Hello I have a one year old child with cystic fibrosis. When the parents have a disease like rhinitis, is the use of alcohol based hand gel and mask enough?
15.05.2012
Vitamin D target value and refund
Hello, I was just searching about your expert advice platform and found the statement that the target value for vitamin D is 20ng/ml. This is not according to the newest recommendations which suggest at least 30ng/ml. Question: Most patients do not get their vitamin D preparations reimbursed (what is probably not such a big problem due to the low price). Could, however, highly dosed vitamin D be prescribed for (almost all) CF patients and thus become refundable (e.g. Dekristol 20.000 IU; taken according to requirements for example once per week or once per month…)? Vitamin D can be stored in the body, doesn't it…???
15.05.2012
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