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Tags
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- Blueish tongue
- Should one be worried when one repeatedly has blueish discoloration of the tongue? Is this a sign of shortage of oxygen? Can it occur in young children? Is it part of CF?
- 03.05.2012
- An experiment
- In the context of an experiment in school. It’s known that CF patients loose more salt than healthy people. This is due to the defect in the CFTR-protein. I would like to prone my experiment as follows: First I measure the amount of salt in the blood of patients with CF before they have eaten. Then I have them drink a salty liquid. For instance a sports liquid and then I measure the salt content again. If the patient still loses the same amount of salt, drinking this salty liquid will have a positive effect on his salt balance. I just don’t know where I should measure the salt content given the limited possibilities in the lab at our school. I don’t think a sweat test will be an option. Should I measure it in the saliva or in the urine?
- 02.05.2012
- Homeopathy
- Is anything known about CF and increasing the immunity with homeopathic medicines or vitamins, minerals, amino acids or trace elements? Or is there any information about non registered medicines that is of importance?
- 02.05.2012
- MRI, CT
- Why do people with CF need a CT or MRI scan? What are the pro’s and con’s. Especially with regards to children.
- 02.05.2012
- Sweat test
- What is the norm of the sweat tets? When the result of sweat test is normal, and when is abnormal?
- 02.05.2012
- association in Morocco
- Hello, A friend has a 9 month old baby, he has just been diagnosed with CF. The doctors are not trained because there are very few cases in Morocco. I am doing some research to help. I turn to you. Are there specialized units? Rabat? Casablanca? .... Is there an association that could help? I gave him of course the link of the French Association"Vaincre la mucoviscidose" Thank you for your attention I.
- 02.05.2012
- Contamination
- What is the danger and evolution of a microbial contamination with Serratia? Thanks.
- 02.05.2012
- PTC124
- I would like to know PTC124 results. Thank you
- 02.05.2012
- CF teams in the Netherlands
- Where are the 7 CF teams situated in the Netherlands?
- 02.05.2012
- 2009 French CF Registry Report
- Hello I have a question about the graph (Figure 4) on page 4 of the french CF registry: what explains the lower probability of survival of the cohort 2007-2009 as compared to other birth cohorts? (dropping out of the curve between 2-3 years duration).
- 02.05.2012
