User login
Enter your username and password here in order to log in on the website:
Tags
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- Characteristics of CF at young adult age
- My question is: what is the chance that the diagnosis of CF is only made at a later age. I am 20 years old and have no previous complaints. Recently I seem to have a lot of secretions that go from my nose to my throat. And recently I seem to notice that my stools are fatty. I wonder if this an indication to go and consult my general practitioner. Otherwise I do not have the diuretic complaints and I don’t want to go to my GP as someone who sees me with every single trivial complaint.
- 03.05.2012
- CF yes or no?
- Dear, I am a 35-year old man. Because we had problems starting a family, I had tests done. I seem to have F508del and R117H in combination with 7T/gT. Whether I do have a vas deferens? Different answer by different urologists, from ‘not present’ to ‘one sided absence’. In any case, I do not seem to have sperm in the ejaculate. We are at present doing IVF. My wife does not have any abnormalities. Of all my questions, this one is my most important one. Is this combination seen in patients with CF (mild form?) or not? Should I expect other problems in the future?
- 03.05.2012
- Link between CF and Sjögren disease?
- Is there a link between CF and Sjögren disease?
- 03.05.2012
- Pseudomonas
- What are the consequences?
- 03.05.2012
- Fire place
- Is a fire place for wood burning to be avoided in the house of patients with CF. Our son is 2 years old and has a severe form of CF. A worried parent.
- 03.05.2012
- Throat, nose and adenoids
- Is it important that a toddler with CF should have his tonsils and adenoids removed? The only complaint is noisy breathing during the day and snoring at night time. I read that the tonsils are important to prevent bacterial infections. Should the tonsils and adenoids in children with CF be removed or not? A father.
- 03.05.2012
- Blueish tongue
- Should one be worried when one repeatedly has blueish discoloration of the tongue? Is this a sign of shortage of oxygen? Can it occur in young children? Is it part of CF?
- 03.05.2012
- An experiment
- In the context of an experiment in school. It’s known that CF patients loose more salt than healthy people. This is due to the defect in the CFTR-protein. I would like to prone my experiment as follows: First I measure the amount of salt in the blood of patients with CF before they have eaten. Then I have them drink a salty liquid. For instance a sports liquid and then I measure the salt content again. If the patient still loses the same amount of salt, drinking this salty liquid will have a positive effect on his salt balance. I just don’t know where I should measure the salt content given the limited possibilities in the lab at our school. I don’t think a sweat test will be an option. Should I measure it in the saliva or in the urine?
- 02.05.2012
- Homeopathy
- Is anything known about CF and increasing the immunity with homeopathic medicines or vitamins, minerals, amino acids or trace elements? Or is there any information about non registered medicines that is of importance?
- 02.05.2012
- MRI, CT
- Why do people with CF need a CT or MRI scan? What are the pro’s and con’s. Especially with regards to children.
- 02.05.2012
