Topics

Sweat test
What is the norm of the sweat tets? When the result of sweat test is normal, and when is abnormal?
02.05.2012
association in Morocco
Hello, A friend has a ​​9 month old baby, he has just been diagnosed with CF. The doctors are not trained because there are very few cases in Morocco. I am doing some research to help. I turn to you. Are there specialized units? Rabat? Casablanca? .... Is there an association that could help? I gave him of course the link of the French Association"Vaincre la mucoviscidose" Thank you for your attention I.
02.05.2012
Contamination
What is the danger and evolution of a microbial contamination with Serratia? Thanks.
02.05.2012
PTC124
I would like to know PTC124 results. Thank you
02.05.2012
CF teams in the Netherlands
Where are the 7 CF teams situated in the Netherlands?
02.05.2012
2009 French CF Registry Report
Hello I have a question about the graph (Figure 4) on page 4 of the french CF registry: what explains the lower probability of survival of the cohort 2007-2009 as compared to other birth cohorts? (dropping out of the curve between 2-3 years duration).
02.05.2012
Late detection
Hello, My brother has been found to have cystic fibrosis. He is 48 years old. He seems to have a liver problem with a high value of gamma GT. Is this possible? What is his life expectancy? Is there a cure? Where can he be well be treated (he lives near Lorient in Brittany)? Should we be tested (siblings, our children, his children ...)?
02.05.2012
Frequent stomach ache (underbelly)
Hello, my daughter (12 years old, CF) keeps having stomach aches in the underbelly, at times severe. She has the feeling that the stool “pushes” and that she has to go to the toilet repeatedly, although the pain rather gets worse afterwards. Quiet, distraction with positive things (e.g. listening to music) and a hot-water bottle sometimes help. However, we would like to know the cause of this pain and whether one can do anything to prevent/treat it. A stool test for candida (among other things) was negative, and the occurrence of the pain cannot be linked to certain food products or wrong dosage of Creon. Thank you for your help and kind regards!
02.05.2012
Antibiotics
Can antibiotics that are administered in form of an infusion be replaced by intravenously injected shots?
02.05.2012
Menopause and hormone replacement therapy in CF
Hello, Which modifications of the disease can menopause cause (I am 53 years old)? Would a hormone replacement therapy have positive or negative effects?
02.05.2012
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