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Tags
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- Possible Pregnancy, CF and IVF
- We have tried IVF and we are at a very early stage. Unfortunately I did not manage to do any testing for CF. I am now gathering information about it. I would like to know (if we get positive results about the pregnancy) when and how I can find out if the embryo is a carrier and if there is any treatment.
- 14.02.2012
- diabetes and CF
- Is it possible for patiens with CF to suffer from diabetes due to CF? If yes, what should a mother do for her baby, in order to minimize this possibility? Is it a diet issue? Can it be avoided?
- 14.02.2012
- follow up the disease
- My baby has deltaF508 and R1070W and is almost healthy (details are in a previous question). How do you recommend to treat the baby so that we do not tantalize with many investigations but also keep on eye on the disease. E.g. it was recommended to me to do monthly analyse of sputus, but I see this quite an invasive investigation as long as he has no pulmonary symptoms yet and has no sputus. I currently do throat and nose exsudat for every cold he has. But is it enough? Thank you
- 24.01.2012
- VX-770
- Hi there, My daughter is currently 7 months old with G551D as one of her mutations. I just wondered if the drug is approved this year in the 6yrs and older subset can it then be used in younger children with the dosage ammended accordingly? Or would they need to carry out a clinical trial in younger children first? Thanks, J.
- 23.01.2012
- Cough
- I have a grandson 4 months old who has CF (Delta 508F and G551). To date he has shown no signs of his condition and thriving well. I have had a chest infection and completed a course of anti biotics. I feel well but do still have a cough which I feel will take awhile to clear. Obviously I have kept away from my grandson but as I feel back to normal can I now be in contact with him or must I wait until the cough has completely cleared? Thank you.
- 23.01.2012
- Classes of genes
- What are the classes of CF gene mutations? Thank you
- 23.01.2012
- R1070W
- In what class is R1070W?
- 23.01.2012
- What is afoot?
- vx-770, vx 809-miglustat, ptc124, DNAase, all these are related to CF, but how are things coming along? What are all these? How has the financial crisis these last two years affected the research? Is gene therapy still being researched, or has it been abandoned? Would it be possible to make custom lungs and pancreas? I do not know if I am overly anxious, but I do not know the pace of the research and I do not see any substantial advancement for the next 5-6 years.
- 23.01.2012
- Gene therapy for CF
- I would like to ask the experts about the course of the research in relation to the gene therapy of CF that takes place in the UK and USA and if there is ground to hope for a medical breakthrough.
- 23.01.2012
- negative sweat test and asthma
- I have a child with asthma. The development curves are below normal. The sweat test was negative. I was tested for CF mutations with negative results. Is there any chance that my child may have CF? Can we do any other tests?
- 23.01.2012
