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Tags
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- lung transplantation
- Hello, My brother had a lung transplants for CF five years ago, and he had a chronic graft dysfunction for one year. He is on the waiting list for a new transplantation. Is there a lot of patients who have been transplanted twice (for the lung) ? Do you think he will wait for a long time on the waiting list? Is there a kind of priority for patients who never benefited of this surgery?
- 01.12.2011
- Revelation
- Since some months I suffer from secretions in nose, mouth and lungs. I call it secretions and somebody asked me whether I suffer from cystic fibrosis. I started looking on the internet and was wondering at what age do you get symptoms from this disease and what the symptoms are.
- 01.12.2011
- Antibiotics and dentist
- I have CF and use cotrimoxazol as maintenance therapy. I needed a tooth extraction. The dentist wanted to give antibiotics but because I already take antibiotics he didn’t find that necessary. Does cotrimoxazol help when you need a tooth extraction? You cannot take two antibiotics at the same time, can you ?
- 01.12.2011
- pets
- How long can I stay with a cat?
- 01.12.2011
- Living in the city ? Or living in the country ? Or in between ?
- Are certain air-conditions better than others for patients with CF? Dry air, the sea, the woods, humid air? We live in the center of the city and wonder if this is appropriate. I think that there is more air pollution than in the rest of the city. Can you say anything about where the air is cleaner and what is best for patients with CF ?
- 01.12.2011
- Mutations in Cystic Fibrosis
- How many mutations in CFTR in the CF gene are known so far ?
- 01.12.2011
- Creon
- How should one start a treatment with pancreatic enzymes ? What parameters to use? Do you only need to take it when you eat fat or also with other foods (vegetables/fruits) so that they are also absorbed better?
- 01.12.2011
- Cystic Fibrosis
- Why do so many mutations cause this one disease cystic fibrosis ?
- 01.12.2011
- Lung bleeds (hemoptysis)
- Is there something to prevent lung bleeds? My son has recurrent lung bleeds and he is fed up with it. Already 4 times he had embolization done and he doesn’t want it anymore. Is there something that can straighten his veins ?
- 01.12.2011
- Operation with general anaesthesia
- Dear expert team, due to a mammographically and histologically verified finding, a diagnostic removal of the total focus is planned in general anaesthesia. I am a CF patient at adult age (over 40), take Azithromycin as long-term therapy, in case of acute infections additional antibiotic therapies. What do I as a CF patient have to take into account at such an operation in general anaesthesia resp. what do I have to talk about with the anaesthetist? S.
- 01.12.2011
