User login
Enter your username and password here in order to log in on the website:
Tags
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- Living in the city ? Or living in the country ? Or in between ?
- Are certain air-conditions better than others for patients with CF? Dry air, the sea, the woods, humid air? We live in the center of the city and wonder if this is appropriate. I think that there is more air pollution than in the rest of the city. Can you say anything about where the air is cleaner and what is best for patients with CF ?
- 01.12.2011
- Mutations in Cystic Fibrosis
- How many mutations in CFTR in the CF gene are known so far ?
- 01.12.2011
- Creon
- How should one start a treatment with pancreatic enzymes ? What parameters to use? Do you only need to take it when you eat fat or also with other foods (vegetables/fruits) so that they are also absorbed better?
- 01.12.2011
- Cystic Fibrosis
- Why do so many mutations cause this one disease cystic fibrosis ?
- 01.12.2011
- Lung bleeds (hemoptysis)
- Is there something to prevent lung bleeds? My son has recurrent lung bleeds and he is fed up with it. Already 4 times he had embolization done and he doesn’t want it anymore. Is there something that can straighten his veins ?
- 01.12.2011
- Operation with general anaesthesia
- Dear expert team, due to a mammographically and histologically verified finding, a diagnostic removal of the total focus is planned in general anaesthesia. I am a CF patient at adult age (over 40), take Azithromycin as long-term therapy, in case of acute infections additional antibiotic therapies. What do I as a CF patient have to take into account at such an operation in general anaesthesia resp. what do I have to talk about with the anaesthetist? S.
- 01.12.2011
- Is the genetic testing of the father paid by the insurance?
- Hello, we have a child (3 years) with CF, who has the mutation DeltaF508 homozygously. When the diagnosis was made we were told in the CF center, that it is recommended to us parents to let a genetic testing done sometime (our family planning however is finished, we have 2 children altogether). Now it is like this that my husband (46 years old) coughs strongly very often and is often phlegmy, he does not smoke. As a child he has been diagnosed to have chronic bronchitis. We would like to have a genetic test done. At the CF center we were told at the last investigation of our child that he should address to the human genetic institue within the center. This is really time-consuming, as the center is also over 100km away and my husband is busy with a lot of work. In our case, we do not see the sense of a human genetic counselling (something like this would probably be important if we would like to have more children). Is it not possible to have the blood sample taken without the counselling (e.g. at the general practitioner or at the center) with the explanation that my husband shows symptoms of CF (he has also frequently loose stools) or does this cause problems in the coverage of costs via the insurance? [Question from Germany] Many thanks
- 01.12.2011
- Antibiotics therapy (over three months) necessary?
- Dear expert team, My daughter (CF patient, three years old, mild progression so far with only a few minor infections, completely without cough for three years except during infection times) was just diagnosed with an acute infection of the lungs with Staph. aureus (anti-staphylolysin positive). Recently she had bronchitis for the first time for about four weeks and since then has been having nervous cough every once in a while during days and nights. Apart from this, she is currently infection-free. The CF clinic suggested a three-month antibiotics therapy in order to decrease the antibodies again and possibly eliminate the Staph. aureus. What do you think about this? Do you consider the therapy reasonable? Many thanks for your answer.
- 01.12.2011
- problems of the stomach related to the cystic fibrosis
- hello I am a high school student and we make a research on CF and I would like to know the main problems of the stomach and all the digestive system. thank you for your understanding while waiting for your answer
- 29.11.2011
- About CF
- Hello I am currently in first class in high school and as part of my personal work supervised I want to know for how long the care given to people with cystic fibrosis are in place?
- 29.11.2011
