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Tags
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- flu vaccination
- Is it important to have your child with CF vaccinated against flu? Is there any danger in administrating the flu vaccination (does it possibly contain dangerous substances e.g. antifreeze). Many people do not favor flu vaccination. Which considerations should I make.
- 24.11.2011
- chalk
- Hello Are there any risks for children with cystic fibrosis to use chalk and clear the blackboard at school? Thank you for your response
- 24.11.2011
- cystic fibrosis
- I have a 3 month old daughter diagnosed with cystic fibrosis, my question is : if mother is a carrier and father is not, could it be possible that my daughter to become only carrier and not having a severe form of CF, requiring mechanical ventilation.
- 24.11.2011
- Thermal bath
- Hello, is it possible to visit a thermal bath with a CF patient? I mean like the one in Podhájská village, where the thermal bath is with the water composit similar to death sea. Thanks in advance for an answer.
- 24.11.2011
- P. aeruginosa
- Hello, I am starting to collect information about whal will my nephew with CF be able to do and not to do as he gets older. I have read, that bacteria Pseudomonas is very dangerous for this children. How is possible to be infected with Pseudomonas? Is it possible to be in the garden? How is possible to be infected with this bacteria from soil? Thank You very much for an answer.
- 22.11.2011
- B. cepacia
- Is it possible to detect Burkholderia cepacia in water?
- 22.11.2011
- CF_2
- My son is almost one year old now. When he was three months old, a test showed that he has a high level of chorides in his sweat. Since then we have gone to medical every month but my son hasn´t been ill yet and he doesn´t even cough. His genetics test confirmed that he has CF but I didn´t get any explanation about his condition. Does my son have a milder form of the disease? If so, what does it mean for us, his parents? So far I have been administering Creon to him. He takes Vigantol in his milk, as well as vitamin E. We also have N-acetyl-cystein in case he coughs, but he hasn´t done the inhalation yet.
- 22.11.2011
- CF
- My eleven-month-old son had a test carried out when he was three months old. The result showed that he has 74 mmol/l of chloride in his sweat. He weighs almost 12 kilos and so far he hasn´t been ill except cankers in his mouth. A genetics test confirmed that he has 2 CF-typical genes. I would like to know if CF can break out later in his life or if there is a possibility of a milder form of the disease. I would also like to know what the milder form will mean for us as a family, but, above all, for our son.
- 22.11.2011
- CF testing and ATB
- Hello, I want to ask if taking ATB may influence the result of a sweat test. My son was tested due to repeated coughing. The result was 13. When he was tested he was treated by antibiotics (clarithromycin) what I have forgotten to mention. He was without fever. Thank You.
- 22.11.2011
- CF (Swest test)
- Hello, my daughter, born in 2004, has sweat test 58.5, ...55, but genetic testing were negative for CF (42 mutations). She is ill all the time with repeated sinusitis, wet prolonged caugh. Just ATB helped her. Her condition gets better after antibiotics treatment, but as soon as we start going out, to school etc., cough and other problems return within a week. Do You think she might have CF in older age? Thanks for an answer.
- 22.11.2011
