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Tags
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- Query about webpage
- what is the webpage about CF in Greece?
- 29.11.2011
- baby with difficulty in feeding
- My daughter (3 months 1 / 2) has difficulty to breathe since yesterday. She is under cortisone inhalation. My problem is that she cries when I propose her the babybottle and she refuses to drink. Fortunately I do also breastfeeding so she drinks a little. Does the babybottle require too much effort? I tried with different nipples but no change...
- 29.11.2011
- How certain is the treatment for pseudomonas?
- a)When someone is treated with ciprofloxacin for quite sometime with negative pharyngeal cultures and continues to take the medicine for a little while longer, what are the chances of getting reinfected with pseudomonas during the course of treatment, or immediately after its termination? What are the reasons for the continuation of tandim? b)After how long can the test trace the pseudomonas (today clean, comes in contact, what does the test show tomorrow?) c)Is there any chance that the test may be negative, but the patient has pseudomonas? After how many tests with negative results can I be certain that I am clean?
- 29.11.2011
- When do the real problems begin?
- My child is 2 years old, has pancreatic insufficiency and no real problems with its lungs. Most days I even forget that it has CF, since the medication and physiotherapy have become a routine. At some point, though, this changes. Which age is this? Better yet, what are the stages of the evolution of CF according to the age and growth of a child with CF? I know that each child is unique, but certainly there must be a guide, this for infants, that for toddlers, this for children etc.
- 24.11.2011
- Physiotherapy at home with Mum
- Guillaume, young CF patient, almost 12, is no longer able to do a good physio with a Physiotherapist in private practice. Does he have to do his Physio with his mother in the room where other parents and children are, when he is invited?
- 24.11.2011
- Ataluren® project (PTC124)
- Hello Could you please give me some news about Ataluren® project and if results will be available soon ?
- 24.11.2011
- flu vaccination
- Is it important to have your child with CF vaccinated against flu? Is there any danger in administrating the flu vaccination (does it possibly contain dangerous substances e.g. antifreeze). Many people do not favor flu vaccination. Which considerations should I make.
- 24.11.2011
- chalk
- Hello Are there any risks for children with cystic fibrosis to use chalk and clear the blackboard at school? Thank you for your response
- 24.11.2011
- cystic fibrosis
- I have a 3 month old daughter diagnosed with cystic fibrosis, my question is : if mother is a carrier and father is not, could it be possible that my daughter to become only carrier and not having a severe form of CF, requiring mechanical ventilation.
- 24.11.2011
- Thermal bath
- Hello, is it possible to visit a thermal bath with a CF patient? I mean like the one in Podhájská village, where the thermal bath is with the water composit similar to death sea. Thanks in advance for an answer.
- 24.11.2011
