Topics

CF Symptoms
My daughter (4 years old, with type I diabetes discovered in October 2007) has been sweating heavily since birth, especially at night. Her forehead is salty all day, not only at night. Her nose is blocked early in the morning. When she runs a lot, she starts to cough a bit and I can hear that her airways are full of mucus. Do you think she might have CF?
21.11.2011
Recurrent Pancreatitis
My daughter suffers from an atypical form of CF. In the summer she had acute pancreatitis, which has developed into a recurring problem since then. She has been hospitalized five times, but I still don´t understand why. We strictly adhere to the recommended diet. My daughter, who is allergic to milk, takes Creon three times a day. She also takes sodium cromoglicate and does inhalation. The same situation, however, always returns. Because of this, my daughter has missed a lot of her classes and she keeps having problems at school because of the situation. The school wanted her to repeat a whole year because she is always ill, even though she has an individual course plan. Please, give me some advice what to do. To make matters worse, the authorities have taken away my caregiver's allowance. Thank you for your answer.
21.11.2011
CF Patient´s Weight
Is it possible for me to have fat transplanted into my body? I´m a CF patient with stable weight. When asked, doctors tell me that they don´t have any information about this type of transplantation. The reason for my question is that it´s really annoying that my body has no fat reserves and I get very cold in water quickly. Thank you for your answer to a question that is probably superfluous to everbody else.
21.11.2011
Swine flu
Should I have my eleven-year-old daughter vaccinated against swine flu? She suffers from cystic fibrosis and she has been vaccinated against common flu.
21.11.2011
Sexual problems
My nephew is 18 and he suffers from CF. He doesn´t want to live and we think that he has problems with his girlfriend. I don´t know how to approach this problem and ask him. Is there a possibility that he has sexual problems?
21.11.2011
Pseudomonas
I have pseudomonas and I would like to know if I can pass it on a person who doesn´t suffer from CF but has prolonged low immunity because of flu. I would also like to know if there is any risk that I might endanger the health of a newborn child who is otherwise healthy.
16.11.2011
Holiday
Is it a good idea to take a child with CF to the Turkish seaside? I would also like to know if flying is dangerous to him even if he doesn´t have any serious problems.
16.11.2011
Lack of Appetite
My six-year-old grandson was diagnosed with CF shortly after birth. Today he coughs more than other children and expectorates mucus. Otherwise he is an adroit and intelligent boy who runs, plays football, climbs trees and skis – all this thanks to Creon, massages, inhalation and nutritional drinks. His problem lies in the fact that he never feels hungry. When left to his own devices, he doesn´t have breakfast, snacks or lunch. He only reluctantly eats a small piece of bread for dinner. This is impossible, of course. His parents force him to eat and they punish him when he doesn´t want to – they forbid him to watch TV, play PC games or ski... When that doesn´t help, he gets shouted at and even beaten. I don´t think it possible to punish a child for its disease. Is there anything we can do to help the boy to develop an appetite?
16.11.2011
Stenotrophomonas maltophilia
Is intravenous antibiotics treatment necessary for a child with CF who has stenotrophomonas maltophilia and is resistant to peroral antibiotics? What other type of treatment would you recommend?
16.11.2011
What should I do?
Immediately after his birth, my nine-month-old son underwent several Gastrografin treatments because of insufficient bowel movements. His ultrasound scan clearly showed that some amount of stool remained in his descending colon, even though he was already excreting „yellow“ stool. His stomach was bloated, he had flatulance and didn´t vomit. The stool colour kept changing (it was first yellow, then brown, then green, then blackish) and so did the stool frequency (once in ten days). The results of stomach scan didn´t show any problems. When my son was about three months old, his stool became watery and it came several times a day, containing varied amounts of phlegm, black bits and streaks of blood. I started administering probiotics and went on a strictly non-milk diet for 2 months (I breast-feed). There has been no change. We waited for a gastroenterology examination for 5 months but when it came, the doctors only recorded my son´s problems and did blood and stool tests (the results were in norm). We have to wait until May for another consultation. When my son was six months old, we started giving him complementary food but everything came out of his body undigested. Five weeks later only a part of the food was digested, and now my son digests most of what he eats. I still breast-feed and my son thrives. Since birth he has had some mucus in his airways. When a swab was taken, haemophilus was cultured in his sputum but he wasn´t treated in any way. I´m afraid that he might have CF. Both our paediatrician and gastroenteorologist mentioned the possibility when asked, but neither recommended any futher tests. Can you help me, please?
16.11.2011
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