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Tags
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
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- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
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- ventilation
Topics
- Detoxifcation
- Is detoxification suitable for children with CF?
- 15.11.2011
- CF in what seems like healthy baby
- The little boy in question 10 wks. old was diagnosed with CF during routine heel test. Genes have been identified as F508 Delta and G551 which I understand are Class II and III so despite being too early to run sweat test no doubt regarding diagnosis. He has no 'salty' taste off him, gaining weight averaging 4 - 5oz per week, no oily stools, bottle fed and not greedy for additional milk, no cough etc. and high on the height scale. He immediately was seen by a 'physio at his CF centre, put on the little mask with 'physio in between once a day and on daily antibiotic twice daily as a preventative measure. Question is it because he is at a very young age that absolutely no symptoms of CF are showing? Also he is extremely distressed taking the antibiotic by syringe and often spits this out and has to be given again. Note opinions vary on using antibiotic when only preventative. Do you think this should be discussed more fully with the CF consultant at the clinic owing to the distress to both parents and child it is causing? Apologise for two questions. Thank you.
- 15.11.2011
- mutations
- Hello The 2 mutations p.W1204X et p.I507del led to which clinical profile? Thanks for your help.
- 15.11.2011
- Life span of germs
- Dear experts, My boyfriend is a physiotherapist who also treats CF patients, and we are now wondering how long MRSA or Burkholderia cepacia can survive in a (healthy) lung in case he catches one of those two germs? We are afraid he could transmit the germs onto me. Kind regards.
- 15.11.2011
- Summer camp
- Hello, Our 13 year old son would spend his next summer vacation in a summer camp and enjoy the adventure. As he is chronically colonized with Pseudomonas aeruginosa, he receives Colistin inhalation and Pulmozyme daily. His FEV1 is 95% and he is very fit, but we are not "hot" for him to go camping. What about hostels or summer camps in terms of hygienic rules ? Do you have addresses of institutions adapted (not for IV treatments !) Or vacation ideas that meet the constraints of care while taking into account their need for emancipation? thank you in advance for your advice
- 15.11.2011
- Respiration
- Hello I have a friend who suffers from cystic fibrosis, and I want to get an idea of her breathing, how she breathes
- 15.11.2011
- Fertility
- Is it true that a person with cystic fibrosis may be sterile?
- 15.11.2011
- Having children while being a person with CF
- If one is affected with CF can one have normal children ?
- 15.11.2011
- Healthy carrier and desire for children
- Hello I am writing because my husband is a healthy carrier (for cystic fibrosis). If one day we want a child how do I make the test for me?
- 14.11.2011
- Stem cells and CF
- I would like to ask if stemcells can contribute to the therapy of CF
- 14.11.2011
