Topics

Summer camp
Hello, Our 13 year old son would spend his next summer vacation in a summer camp and enjoy the adventure. As he is chronically colonized with Pseudomonas aeruginosa, he receives Colistin inhalation and Pulmozyme daily. His FEV1 is 95% and he is very fit, but we are not "hot" for him to go camping. What about hostels or summer camps in terms of hygienic rules ? Do you have addresses of institutions adapted (not for IV treatments !) Or vacation ideas that meet the constraints of care while taking into account their need for emancipation? thank you in advance for your advice
15.11.2011
Respiration
Hello I have a friend who suffers from cystic fibrosis, and I want to get an idea of her breathing, how she breathes
15.11.2011
Fertility
Is it true that a person with cystic fibrosis may be sterile?
15.11.2011
Having children while being a person with CF
If one is affected with CF can one have normal children ?
15.11.2011
Healthy carrier and desire for children
Hello I am writing because my husband is a healthy carrier (for cystic fibrosis). If one day we want a child how do I make the test for me?
14.11.2011
Stem cells and CF
I would like to ask if stemcells can contribute to the therapy of CF
14.11.2011
ozon - accupuncture
I hear everyday about these two methods? Can they offer/complement anything to the treatment of a patient with CF?
14.11.2011
Homeopathy and CF
Would homeopathy be of any help for the improvement of the life of a baby with CF? Can it bring any good to the pulmonary system and the pancreas? Or can it fight pseudomonas? Is it worth it to use it in parallel?
14.11.2011
Gene sequence
My husband was tested for CF at Horemion. According to the answer we received the results are not indicative of any presentation of a CF mutation, but one change was detected in the sequence of the CFTR gene (2752-15G/C), which, due to its location, is considered neutral without any pathological consequences. Can my daughter, who is a simple carrier of the DF508 mutaion, carry this sequence as well, and not suffer from CF?
14.11.2011
Chromosome 13
After the amniocentecis the mutation DF508 was detected in the embryo in heterozytotical form. In the test results it is mentioned that a molecular screening is necessary, which was conducted at Horemion laboratory. It is also mentioned that the analysis regarding chromosome 13 was not informative after the analysis of two polymorphic indeces. The final results are expected after the culture. Can the above have anything to do with the presentation of CF in the baby?
14.11.2011
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