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Tags
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
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- asthma
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- covid-19
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- modulator therapy
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- oxygen supplementation_therapy
- physiotherapy
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Topics
- ozon - accupuncture
- I hear everyday about these two methods? Can they offer/complement anything to the treatment of a patient with CF?
- 14.11.2011
- Homeopathy and CF
- Would homeopathy be of any help for the improvement of the life of a baby with CF? Can it bring any good to the pulmonary system and the pancreas? Or can it fight pseudomonas? Is it worth it to use it in parallel?
- 14.11.2011
- Gene sequence
- My husband was tested for CF at Horemion. According to the answer we received the results are not indicative of any presentation of a CF mutation, but one change was detected in the sequence of the CFTR gene (2752-15G/C), which, due to its location, is considered neutral without any pathological consequences. Can my daughter, who is a simple carrier of the DF508 mutaion, carry this sequence as well, and not suffer from CF?
- 14.11.2011
- Chromosome 13
- After the amniocentecis the mutation DF508 was detected in the embryo in heterozytotical form. In the test results it is mentioned that a molecular screening is necessary, which was conducted at Horemion laboratory. It is also mentioned that the analysis regarding chromosome 13 was not informative after the analysis of two polymorphic indeces. The final results are expected after the culture. Can the above have anything to do with the presentation of CF in the baby?
- 14.11.2011
- Risk behavior and CF
- Hello. I’m preparing a thesis on risk behavior and CF patients. To this end, I’m looking for CF patients (or someone who knows) to answer questions, including CF patient and alcohol, tobacco, non-observance, sport ... Thank you in advance and continue to beat you so! PS: If health care professionals may be interested, I think this would be more interesting for my memory...
- 10.11.2011
- Bronchitol®
- Hello, I’ve just seen that Bronchitol® should be commercialized in Europe. Is this medicine for all cystic fibrosis patients? What are the advantages of this new medicine ??? Thank you for your answer
- 10.11.2011
- Symptoms in healthy carriers?
- Hello, At time of diagnosis, I was told that healthy carriers showed no symptoms. After meeting other parents of children with CF, I realize that many of us have chronic respiratory or digestive problems (asthma in my case). But I don't know if these observations are representative of all parents. I wondered if a study was conducted on the subject. That is a question I have been asking myself regarding the brothers and sisters as we do not know if they are carriers of one mutation or not. Thank you in advance for your answer.
- 10.11.2011
- cystic fibrosis diagnosis
- Please advise wich clinic is more performant for diagnosis, treatment and monitorisation of this disease, for a 6 months old infant in Europe. Thank you
- 10.11.2011
- diagnosis and treatment centres
- Hello. I have a 6 months old boy; after being diagnosed with gastric reflux and pneumonia, he took a sweat test. He was hospitalized approximately for one week before the test and in this time he received perfusions and he was treated with ranitidine, cefozoperazone, acetylcystein, salbutamol and fluticasone for pneumonia and reflux. Because the result of the test was high, 120, Kreon treatment was recommended. The boy is well-fed, he hasn’t had weight gaining problems and besides the fact that he coughed but not so much, he does not have any other symptom of this terrible disease. Nevertheless, the result of the sweat test is very high. Initially, we have been told to repeat the sweat test in 3 weeks and also take a genetic test. But now the doctor called us in 2 days to repeat the sweat test, although the 3 weeks haven’t passed. Because we think the diagnosis was established to easily, we wish to take our son in a specialized clinic in Europe. We found references for 2 clinics in Germany and one in Italy. Can you guide us to a specialized clinic? What do you recommend us to do? Thank you with all our hearts!
- 10.11.2011
- aerosols with colistin
- What`s the amount of saline solution for aerosols colistin dilution?
- 10.11.2011
