ecorn-cf: App. question list

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Grape seed oil: Have you heard about the potential effect of grape seed oil against pseudomonas?; 27.10.2011

Start of nursery school in December?: Hello, Our daughter will be 3 years old in December and we also have a place at nursery school for her starting in the middle of December. Now we are worrying a bit if it is a good idea to send her to nursery school just in the high season of infections or if we better should wait until spring. On the one hand we really would like to raise her like a healthy child but on the other hand we know, of course, that she will not be able to take infections as easily as non-CF individuals. Our pediatritian recommends starting nursery school in December and inhaling cortisone from October on (we have never done this so far), so that she is a bit prepared. We would like to hear your opinion. Many thanks.; 27.10.2011

mutation: hello my 3 month old son has the mutation DF 508 and 2183 AA-G Does anyone has the same mutation and what it is their course of disease even though I know that the mutation is not everything but I do not know anyone with this mutation and I wonder if the other people carry this mutation and what is their evolution. thank you very much for your answer; 27.10.2011

mutations G542x/F508del: Good evening! My daughter carries the mutations G542x/F508del. Is she a "severe case" of CF? Thank you; 27.10.2011

Doubtful sweat tests- continued: I would like to thank you for your first reply. [comment of the ECORN-CF team: for better understanding of this question, please see former question and answer in the additional comment field below]. Regarding your questions, I and my husband were tested before having children, because my cousin’s daughter has CF. During my first pregnancy (2005) I had a CVS testing and the sample was send to the TDL GENETICS lab, in the UK, where it was examined for 33 mutations. My daughter was tested due to growth issues and the relative medical history when she was 3 years old at the genetics lab of Heraklin University Hospital for 29 mutations. My husband has been tested for 86% of CF mutations at the Horemio lab- Department of Genetics, Aghia Sofia Hospital. All sweat tests have been performed at Heraklion University Hospital. I do not know which methods were used. I should add here the test with the lowest values was done in 2005, whereas the rest of the tests were done 5 years later. Where can a full genotype testing be performed? Should we repeat the sweat tests? Do you think that we should visit the Aghia Sofia Hospital?; 27.10.2011

Swimming or something else?: My daughter likes swimming. Would she benefit from swimming in a pool? I visited the venue, the pool in open aired, but the inside of the building is very humid, with water everywhere. I would say that it is very clean, and there are a lot of people, aged 3-18 years. In the mornings everything is dry, but in the afternoon the situation is chaotic. My daughter wants to go to the pool very much. What should I do? Which criteria should I use, in order to select a sport for my daughter, which she will not have to abandon due to CF? Open spaces, closed spaces…; 25.10.2011

cleaning of nose: I am a mother of a child with CF. When needed, I suck out with a device the nose of my child to clean it (saline, sucking, cleaning). How healthy is this, since my child may have pseudomonas and the sucking is strong and goes deep inside me? Thank you!; 25.10.2011

CF child and pet: My daughter has CF and is 8 years old and in very good condition. She does not have pseudomonas. Her wish was a pet, so I got for her a Siamese kitten, which we keep in our apartment. The kitten is fully vaccinated and we have it for 6 months now. My friends insist that this is wrong and harmful for my daughter. Is such a thing possible? Till now I have not noticed anything different, just that my child is happier. What is your opinion? Thank you!; 25.10.2011

Cost of CF testing: How much does the testing for CF cost at Aghia Sofia Children’s Hospital Greece)? Can I be referred by IKA?; 25.10.2011