Topics

Cystic fibrosis related diabetes
My son, aged 28, has just been told that he should receive a treatment for diabetes in the near future (within a year, more or less) and then be hospitalized for 15 days to control treatment. What about this treatment, inconvenience, devices to carry everywhere (is it light weight, discrete), insulin conservation (refrigerator…)? He is very concerned about this increase in care. Thank you in advance for your reply.
20.09.2011
strenght training: power plate
Hello, Strenght training is recommended to ensure one's health. Is Powerplate possible? Is it possible with a totally implantable venous access device? Is there a risk or a contraindication? For instance can it move because of the vibrations?
20.09.2011
aromatherapy
Could aromatherapy be beneficial in the fight against bacteria (Pseudomonas and staphyloccus for example)?
20.09.2011
genes
Hello, What kind of symptoms are associated with these two mutations: delta F508 and N1303K? Thank you very much to enlighten me.
20.09.2011
Cystic fibrosis
Are there CF specialized doctors?
20.09.2011
filter tap
Hello, Are there risks to use water filtered by a device installed directly on tap (type filter Brita on Tap) in the context of cystic fibrosis? Thank you for your reply. Regards.
20.09.2011
Aircleaners or homeventilation
Hi I have been searching the internet to get info about aircleaning/air purifiers and the positive effect it might have on cf. In the us i can can se many who uses this. It is a machine with a filter(hepa) it is not a humidifier. here is the link for one http://www.allerair.com/air-purifiers/airmedic-plus-series.html. what is your opinion as experts is this a good solution that could help my child age 3 years or is it better investing in a complette home ventilation system like this http://www.genvex.dk/uploads/GB_-_GES_Energy(2).pdf L.
19.09.2011
PICC line for babies, for intravenous antibiotic treatment
Hello, Could you explain the benefits of this system in an IV treatment (benefits, risks, what it is, how is this set up), for children under 3 years? thank you in advance
19.09.2011
How to get rid of MRSA
Our son (6 months old) is permanently struggling with MRSA (in the nose and throat). Currently, he is colonised but he also had an MRSA infection twice; each of them was treated by strong antibiotics. Once, there was a short-term success, once there was no success, respectively, there is currently no infection but the colonisation is still there. Is it possible at all to get rid of the colonisation at home? How big is the chance? Is there any oral antibiotics that is effective? We have been in the hospital six times alltogether and I cannot go on like that any more. Which measures do your recommend to take?
05.09.2011
Chorionic villus sampling (CVS)
Hello! My husband and I have a daughter with CF (mutation d508 and g551x). Now we are thinking about having another child. Which prenatal diagnosis is available? I read about chorionic villus sampling (CVS). Is CVS done or first an amniocentese? Can this sampling really be performed in the 8th week of pregnancy? How long does it take to get the result? How reliable is it? Many thanks for your answer.
01.09.2011
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