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Tags
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- Biphosphonate therapy
- Dear Sir or Madam, What does a biphosphonate therapy as a treatment for osteoporosis involve? How is this therapy performed and what are the side effects? I read that biphosponates are also used in persons with cerebral tumours… it seems to me that it is a very strong drug. Is such a therapy to be recommended for CF individuals with osteoporosis? Thanks, N.
- 01.09.2011
- Methotrexate and lung transplantation
- A cystic fibrosis patient takes medicine by methotrexate (one injection / week) for rheumatoid arthritis diagnosed 6 months ago with a good result. He thinks about the day he will need transplantation and wonders if he could continue this treatment or not. Thanks for your answer.
- 01.09.2011
- Heat and medicines' stability
- Hello, Lots of medicines’ preservation mentions (as such as for Creon or Colimycin) recommend to keep these at a temperature not exceeding 25°C. Now for several days even weeks, in this period of heat, temperature often exceeds 30°C. Worse, during strolls outside or during car journeys, we sometimes curl 35-40°C. Do our medicines remain stable in these conditions? Cordially
- 01.09.2011
- treatment of ralstonia pickettii
- Dear team, Recently the germ Ralstonia pickettii was found in my sputum for the first time. It was resistant against all tested antibiotics. In between my sputum is tested in a more specialized lab but there is no result so far. These results shall help to organize the next infusions which are due in about 3 months. My doctors at the cf-policlinic are not sure about the effect of this germ since there seems to be little experience. They asked me to do nothing at the moment since they hope the germ doesn’t change my situation for the worse. I am very concerned and afraid to miss anything which might be useful or even essential to do shortly after this discovery. Somewhere on the internet I read that the fast discovery of Ralstonia pickettii allows a fast therapy with good results. But I have no idea what kind of therapy was meant. Do you have any further experience? Thank you very much. J.
- 01.09.2011
- Aquadeks
- Hello I am from Romania, please tell me where I can buy Aquadeks from. Best regards
- 01.09.2011
- Physio sessions abroad
- Firstly a big thank you to all the team for your answers and tips that help us every day, you're a great help. We often go to Portugal and Spain, we would like our grandchildren to discover these countries. Do you have a listing of physical therapists with whom we can approach if physiotherapy sessions were necessary? thank you
- 01.09.2011
- Cystic Fibrosis and carriers screening
- Hello, Why is it not done automatically as toxoplasmosis or rubella, a search for future young parents (no history in the family) that would check if they are carriers of the gene or not? I think it would be less expensive for the Health Insurance Coverage than paying a lifetime to care for a sick child and would avoid a lot of despair! A grandmother who has just learned that her grandson has got it and who remains convinced that it could have been avoided by a prenatal test!
- 01.09.2011
- new clinical trial
- Hello Our physician told us about a new research protocol calling IGY IMPACTT ... from a Swedish laboratory. The treatment is made from egg yolk, to combat Pseudomonas aeruginosa. Can you give me information related to this treatment. Thank you
- 01.09.2011
- Aquarium visit
- Is there a risk for a CF child when visiting an aquarium ?
- 01.09.2011
- Gluten
- Hello! I read that CF patients often have difficulty to digest products with gluten. This information can be found in many sites, including this one: http://www.naturosante.com/rubriques/conseils/conseil.php?24 I quote: "It was noted that children with CF are especially susceptible to products containing gluten." Is this true? Do we know the reason? What are the consequences of gluten sensitivity? Are there studies on this? If so, what precautions to observe concerning food? Thank you.
- 01.09.2011
