Topics

diagnosis-diarrhea
Hello, Our 18 month old daughter has diarrhea since the middle of June, with a few days of respite but still liquid stools. Our family doctor, after he sent us to a gastroenterologist, who found nothing unusual (analysis of stool, blood, ultrasound) unless an infection (white blood cells and platelets very high), orients us to an allergologist. By phone, he told him this might be cystic fibrosis, but there is nothing abnormal about her lungs. Is it possible? Thank you for your response, we have an appointment with the allergologist on Thursday 25. E. K.
01.09.2011
Positive influence of the air at the North sea
Dear, I have 2 questions - Can the composition of the air in the area of the North sea diminish respiratory symptoms in patients with CF? - Is there a positive influence of the composition of the air at the North sea (salt-iodine) on the progress of lung damage in patients with CF? I realise that there are probably few scientific studies that can support your answer. Thank you! Kind regards,
01.09.2011
Metagenome, type of intestinal flora and cystic fibrosis
Hello, Are there currently studies or research on the intestinal flora in patients with cystic fibrosis (impact of meconium ileus & of pancreatic insufficiency on the flora, one of three intestinal groups more present or not etc ...)? I refer to the project MetaHIT (Metagenomics of Human Intestinal Tract) initiated in 2008. Thinking that the intestinal flora which is responsible, ultimately, of assimilation (and thus activity) of many drug molecules, just as it does for certain foods or vitamins I can say that by the knowledge of "intestinal group" of the patient could adjust its medical treatment, give nutritional advice tailored with the aim to maintain the best possible BMI thank you in advance for your response
01.09.2011
Mountain Holidays: height limit?
Hello We wonder if there is an altitude limit not to exceed in the mountains (we are planning a stay of 8 days in the Alps at 1800 meters above sea level)? Our daughter is aged 15 months, and requires daily chest physical therapy . thank you in advance.
01.09.2011
Aerosol
Hi, I have heard about a new « intelligent » device called ALTERA. Do you know it ? What are the differences between this device and the others ? Thanks.
01.09.2011
Intake of extra salt by baby’s not harmful?
Dear, Normally spoken one says that salt is not good for baby’s, it is not good for the kidneys. Now a baby with CF does get extra salt capsules. Are you sure that there is no harm in this? Or do we just have to choose between 2 bad things? Thanks for your reaction.
01.09.2011
Fungus after water damage
the plumber discovered mushrooms under the ceiling of our bathroom. Is it safe for my 8 month old daughter affected by cystic fibrosis? Do I need to have her away some time during the work? Thank you.
30.08.2011
Pancreas
Why is there a maximum amount of pancreatic enzymes that can be taken? My stools remain very fat despite taking the maximum dose. I do take gastric acid inhibitors, but is there something else I can do to have less fatty stool, less flatulation and less belly aches? My fat absorption remains about 70 percent.
30.08.2011
Diarrhea or constipation
I have a question concerning CF. I have a diagnosis of asthma (since the age of 5 years) but I also had many problems with my intestines (sometimes I had constipation, the other time I had diarrhea). I understand you cannot answer whether I suffer from a mild form of cystic fibrosis. But I would like to ask if people with CF have diarrhea or constipation or both? Thank you in advance.
30.08.2011
Shortness of breath
Hello, I seem to have problems like an asthmatic patient but I do not have asthma. I do not have oedema, I do not have allergies, nobody seems to be able to help me and I have been tested for very many disease. What do you think?
30.08.2011
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