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- ABPA_Aspergillus
- accompanying diseases
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Topics
- Outdoors amusement park for children
- Hello, We would like your opinion on the possible risks associated with visiting an outdoor amusement park. In fact, we plan to spend a day with our 2 year old daughter, but we wonder if there is a particular risk, especially about a contamination with Pseudomonas Aeruginosa. Children's attractions such as "boat ride" or "logs" are not necessarily submerged but are subject to splashing water (eg http://www.fraispertuis-city.fr/attractions/petits / la-riviere-d-adventure /) and they are often the most appreciated by children. A question about the site has already mentioned parks, but only in terms of "air contamination". This risk seems low in the summer but what about the risks associated with the presence of water. Subsidiary question: what do you think of “ball pools” (eg http://www.fraispertuis-city.fr/attractions/petits/piscine-a-boules/)? Is it really a "nest of germs" as we sometimes hear? Thank you in for your answer. Sincerely
- 01.08.2011
- Rare mutation
- Our son, almost 2 years old, has the mutations F508del and E1104V. The institute for human genetics told us that a prognosis cannot be given since his constellation was unique. Are you able to tell us something about it? Many thanks.
- 01.08.2011
- Drying devices after water damage
- Dear expert team, in my apartment there has been a water damage due to a lacking water pipe during my holiday, that means the floor and 2 walls are humid. The mould has already been killed and now walls and floor have to be dried with drying devices. These devices reduce the air humidity to 30% and are supposed to run 14 days possibly 24 hours a day (due to the enormous noise level this is hardly possible). The drying company said to me that this would not be harmful to healthy people, one only had to drink more. How is this in case of CF, what do I also have to take into accout? Can I put the devices on at all when I am in the appartment or should I better put them only on when I am away? Many thanks in adavance, Best regards,
- 01.08.2011
- CF dentist
- Does anyone know a dentist in the region of Hannover, Germany, who is specialized in CF patients?
- 01.08.2011
- Efficacy of VX 770
- Dear expert team, I have besides F508del the mutation "FTR del 2,3". In case of the homozygous occurence of F508del, one does already know, that VX 770 is efficient only to a very small extent concerning the nasal potential difference. It is known to me, that there are at the moment no empirical results on the efficacy of VX 770 at the mutation "FTR del 2,3". However, is there any knowledge if more proteins reach the target membrane in case of the mutation "FTR del 2,3" in comparison to F508del (so that also VX 770 could have higher chances to influence the nasal potential difference positively)? Many greetings
- 01.08.2011
- Virulence of ESBL-E. coli
- One year ago, during a bronchoscopy of my son (13) ESBL (=extendend-spectrum beta-lactamase) (e. coli) have been detected in the lungs. Which specific potentail of danger have these germs, particularly as I do only get few to no information from the center, to which subgroup the specific ESBL-germ of my son belongs to. The statements of Prof. Tümmlers answer to a former question in this forum concerning an ESBL-positive grand-grandmother let one shiver. Many thanks and many greetings
- 01.08.2011
- MMAD (Mass Median Aerodynamic Diameter = size of particles)
- Hello, - Which size of particles is ideal in case of inhalation with colistin and DNAse? - Are these sizes achieved with the e-flow? - The particle size should not fall below under which minimal size for both drugs (in case inhalation is performed with a different nebulizer)? Many thanks
- 01.08.2011
- Water spray
- Hello, Do you recommend water sprays that are sold in the pharmacy (e.g. Evian, Avène…) in order to moisten the skin of CF adolescents after sport or when the weather is hot and sticky, or is there a danger to be contaminated? Many thanks.
- 01.08.2011
- Recurring infections
- Hello, My son has infections permanently. After a fortnight-long oral antibiotic treatment he gets a new infection at the latest after another 14 days. He is desperate and would like to have a longer healthy period. School attendance is also heavily affected. Best regards
- 01.08.2011
- Immunoglobulin A
- Dear ladies and gentlemen, is there call for action in case of CF patients if the immunoglobulin A value is too high or too low? Many greetings and thank you
- 01.08.2011
