ecorn-cf: App. question list

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Composition and effects of Creon (Pancreatine): Does Creon (Pancreatine) only help the digestion of fat or also when the pancreas does not produce enough enzymes to digest proteins (azotorrhea)? I clarify the question: if you can explain us how it runs, according to the pH level and what about the possible interest of adding some vegetal enzymes like papain or bromelain. Thank you; 12.07.2011

urolithiasis: Does Cystic fibrosis predispose to the urolithiasis occurrence ? Do patients with cystic fibrosis present urolithiasis more frequently than another people? If yes, what is the explanation?; 12.07.2011

Vitamin K: Hello I am looking for a solution to help my daughter and facilitate the intake of vitamin K1. A capsule form would be ideal but I can not find a lab that does it. Can you help me? Thank you; 07.07.2011

Stay in holiday resort: What are all the precautions to be taken during the boat ride and during the stay? We are planning a trip to Corsica in a holiday resort with our little girl of 3 years Thank you.; 07.07.2011

AEROSOLS: When a CF patient is treated with nebulized salbutamol (Ventoline) and RhDNase (Pulmozyme), what is the preferred order and delay to observe between these aerosols ?; 07.07.2011

Cystic Fibrosis : interest of probiotics, prebiotics: What are the dietetic approaches about probiotics & prebiotics in cystic fibrosis (for baby, child, teenager, adult), given that there are different types depending on whether the patient can chew or not, eat more vegetables, or meat, is on antibiotics etc ... ? We heard about the use of probiotics for diarrhea, and especially after antibiotics courses that kill both the bad bacteria and the good ones By digging the topic, we see the importance of a healthy intestinal flora for the immune system, in the digestion and assimilation of nutrients, production of some vitamins and help for digestion. What advice can you give?; 05.07.2011

Indication for ERCP?: Dear expert team, my question: Is there an indication for ERCP, if necessary with lithotripsy? It deals with a 10 year old Vietnamese girl, asymptomatic since autumn 2010 with condition after pancreatitis in case of pancreas divisum and pancreaticolithiasis in autum 2010, actual in the MRI atrophy of the pancreas, in former times questionably already a pancreatitis. Suspicion of CF with a conspicous change of sequence with unclear clinical relevance (c.374T>C und 5T-Allel with 11GT Repeats/7T-Allel with 11 GT-Repeats), very mild respiratory symptoms, until now thrives well, acutally decreased pancreas elastase in the stool, sweat test several times pathologic. Many thanks and with best regards, Dr. A. S.; 04.07.2011

Achromobacter: Hello Our 11 years old son is principally chronically colonized with Achromobacter xylosoxidans (and also with Staphylococus Aureus controlled with daily Floxapen) and intermittently with 2 other Achromobacter…. We are surprised that he receives only Colistin aerosol therapy against this Achromobacter. Is it enough with 2 per day ? What can you tell us about this bacterium? Is it aggressive? Can it stays during several years or does it evolve very fast? We thank you in advance for your answer and for your website where we can ask questions that concern us.; 04.07.2011

Pancreas enzymes: Do you only need to take enzymes with fatty foods or also when you eat protein. Should you increase your enzymes when your stools smell really bad?; 30.06.2011

Fever: Dear editorial team, normally fever is in case of healthy persons something positive. Because it has the effect, that viruses and bacteria are not able to multiply anymore. On the other hand I read, that fever has to be avoided in case of CF, because loss of electrolytes and dehydration impend. However it would be of advantage, to drink a lot, to avoid this dehydration in case of fever. Is it therefore good or bad if you have fever as a CF patient? Many thanks and many greetings,; 30.06.2011