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Topics
- crackles
- Since four months, my lungs crackle with respiration. I realize antibiotics and lungs still crackle as much. What is the reason? Sometimes, I feel air do not get through certain places and I am out of breath despite saturation at 94 or 95%. I present tachycardia: at rest, my heart frequency is at 140. I realize heart examination. My saturation do not get down. Why do lungs crackle? Are bronchi too closed or it is secretion or ? Have you got a solution to reduce crackle, because I’m fed up. Thank you
- 30.05.2011
- Portaneb (nebulization)
- Hello, Could you precise the differences between the “travelling inhalation devices” Portaneb and Portaneb Lite compressors : technical data (size of the droplets, loudness), performance with colimycine and RhDnase, prices, can they be rented by a pharmacy, are both available with disposable nebulizers, where and to what price? Thanks for your response.
- 30.05.2011
- Prenatal diagnosis
- I would like to know whether CF can already be diagnosed when the mother is still pregnant.
- 26.05.2011
- cystic fibrosis
- Hello. I have a boy that next month will be one year old. He took a sweat test and the result was 106 and then he took a genetic test at Genetic Lab in Bucharest (we live in Constanta). The result of the genetic test was: 1. the following mutations were detected: R553X-F508del, both heterozygous. 2. Polymorphism study: 7T-9T. I asked what does that mean, besides the fact that he has the disease and they told me to see a specialist. We have an appointment with the specialist 2 weeks from now. My question is: are there other tests necessary to confirm/deny the initial diagnosis. Thank you in advance.
- 26.05.2011
- cystic fibrosis-genetics
- What does amplification of exon 3,4,10,11,19,20,21 mean on CFTR gene, no mutations were found. This analysis was sent to France (so does the laboratory say). They said that they will sent it in France for complete DNA sequencing for cystic fibrosis at LGNA (IGNA) in France, at Prof Jean Paul Moisan, that cannot be reached by phone, and these results were sent without complete DNA sequencing and no other explanation. If there is any one that can bring us some informations we would be grateful.
- 26.05.2011
- neonatal screening result
- Hello! My daughter is 5 week and 2 days old at the time that I’m writing you. At the neonatal screening, the value of immunoreactive trypsin was 64.9, and at the age of 4 weeks and a half, we repeated the analysis and the value was 1024 (400 being the maximum for that age). In both cases the blood draw was made at Euroclinic, and the analysis was made by SYNLAB in Germany. By now, the weight gain was of 870 grams, she has good appetite, the stool is normal, a few times a day and the smell is not that unbearable. From time to time she has nasal secretions but they are quite compact, and I think it’s because of the humidity level of the room which is low enough. I have to purchase a room humidifier. She doesn’t sweat very much and her skin isn’t salty. Is it possible that these tests are wrong? I mention the fact that there are no cases of CF in our families. We continue the investigations, but we would like an approved opinion about these test results. Thank you and I am waiting an answer from you.
- 26.05.2011
- treatment
- Prof.Dr.Ioan Popa, my name is Maria. I have 2 sons that suffer of CF: Eugeniu 22 year old and Cristian 17 year old. My oldest son is finishing the Law School at the University of State in the Republic of Moldova and he has the occasion of attending postuniversitary studies in Timisoara with a European scholarship. I, as a mother, have great fears about his treatment there. In the present he needs hospitalization once in three months. Tell me, please, if you treat adult patients also in your Center and if my son will have to pay for the medical attendance, not being a Romanian citizen. Thank you for your answer.
- 24.05.2011
- cysic fibrosis severity clasification
- I have a 16 year old boy diagnosed in 2006 with pulmonary CF, for half a year, he coughs and he expectorates a lot at every episode during the day; he has no other problems, he is normally developed, he weighs 48 kg. What should I do? In present time he uses inhalations with Pulmozyme, he takes Kreon and vitamins; he is also infected with Pseudomonas aeruginosa. His doctor said that he will begin a study with tobramicyn, is it ok? I am desperate.
- 24.05.2011
- pulmonary emphysema
- Pulmonary emphysema is caused by the liver disorder? The ascendant pressure of the liver contributes to the increase of the bronchi, of the lungs and of the heart? Do CF patients that have billiary cirrhosis develop also pulmonary emphysema? How does pulmonary emphysema evolve? Is it treatable (how)?
- 24.05.2011
- Montelukast (Singulair®)
- Dear expert team, In “CF-Focus” (issue 4, 2006) [German publication] there was a report about a positive study with regards to the effect of Montelukast in CF. Since then, I have not heard anything about it anymore. Do you know why this promising approach has not been pursued? Best regards, M.
- 24.05.2011
