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Tags
- ABPA_Aspergillus
- accompanying diseases
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Topics
- CF and swimming in the sea
- I have a question whether CF patients are not allowed to swim in stagnant water. And how is it with swimming in the sea?
- 24.03.2011
- air conditioning
- Hello, We plan to move in an apartment that can be hot in summer. My 2 year old daughter has CF and I'm afraid she might suffer from heat and dehydration. We thought to install air conditioning but we recognize the risks of these facilities. Do you have a position regarding air conditioning at home for CF patients?
- 24.03.2011
- Cystic fibrosis and hygiene at home
- Hello, I am the grandmother of a 1-year-old CF little boy. When he visits my home, what precautions should I respect so he is not in touch with Pseudomonas aeruginosa? How to clean (bleach or Sanytol or equivalent) and where? Is it necessary to eliminate all flowerpots? Can he go to the garden? Thank you for your help.
- 24.03.2011
- Swimming in lake
- Hello, I'm an adult with cystic fibrosis 36 years and I'd like to know if swimming in the lake (freshwater more generally) is not recommended because it would involve risks of infection. Is it better to go "off" rather than at the edge where water is more stagnant? Regards.
- 24.03.2011
- Paternity with MRSA
- I (male, 34, CF with MRSA and Pseudomonas colonization) will be father of twins soon. What do I have to take especially into account after birth? Just concerning the MRSA I am a bit insecure if besides strict hygiene there has to be taken anything into account. I do not want to encounter my littles with a face mask all the time... How suceptible are newborns? Many thanks for your answer.
- 22.03.2011
- Growing up with CF
- My baby has started chewing its food and the creon as well, or it sets it apart. Is it available as powder? What can I do? Thank you!
- 22.03.2011
- Life expectancy
- I've read in an article that life expectancy of CF patients is 39 years ; but is it possible to hope a much longer life ?
- 21.03.2011
- Staphylococcus aureus and Haemophilus influenza
- Dear expert team, in the throat swab of our daughter (actually 1.5 years old, diagnosed with CF at the age of 3.5 months) the above mentioned germs have been found (Staph. already for the third time / Haemophilus for the second time, there were months, where she was free of germs). Our actual CF physician does not want to start an antibiotic therapy in spite of the above mentioned result, as she is doing well. That means oxygen saturation 100%, auscultation of the lung good, weight and height o.k., apetite very well, stool o.k., no hearable and visible mucus congestion, no cough. Our physiotherapist does not feel any suspicious mucus. We inhale always 2 times daily with NaCl plus 3 drops salbutamol and 5 puffs of ipratropium bromide. Our former CF physician had prescribed quickly antibiotics for 3 weeks in case of the above mentioned germs. My husband and I, we decided for a demand oriented antibiotic therapy. But is there demand then at the moment??? Due to the different kind of actions of the physicians we are insecure. Should one give an antibiotic only then, if there are symptoms of infection, as e.g. mucus=hotbed, or better in general, means in case of finding of the germs? In case we would not have made a control throat swab, it would not have been visible that our daughter is colonized with germs at the moment, as she does not show any suspicious symptoms. Many thanks for your help.
- 21.03.2011
- Frequent cystitis
- Dear team, I would like to know, if the salty skin of my partner (CF) could be a reason for the frequent occurence of cystitis. We are only together for 2.5 months, in this time I already had two times cystitis and one fungus in the vagina. As he is prohibited, we have sexual intercourse without condom. Is it possible that the salt content of his skin of the penis irritates my intimal flora too much? Or can this totally be excluded? My gynecologist was not able to give me conclusive answers to this. Many thanks for your help.
- 21.03.2011
- Tivads - Port á cath.
- Dear expertpanel The surgeons at our hospital are used in placing port á caths. on the abdomen. They suggested that specific location for our female CF patients who worries abouthaving a port on the chest or in the upper arm. Placing a port á cath on the abdomen seems ideal because it is allmost invisible, but for a CF patient who also uses the muscles from the abdomen to chough, there might be a problem. So do you have any experience in placing port á cath.s on the abdomen on CF patients ? Best regards Karin Jakobsen
- 08.03.2011
