User login
Tags
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- Pain
- Hello, My daughter with cystic fibrosis (26 years old) has pain in all joints, she suffers a lot. The doctor of the CF centre gives her ibuprofen, but it does not relieve her a lot. Can you tell me if there is anything else to do? Thank you for your reply.
- 20.01.2011
- pain in a young child
- My 4 years old CF daughter complains for already one year about acute and very frequent pains (3 - 4 times a week) in legs (knee, ankle). Especially after intense physical activity. It wakes her at night frequently. Nevertheless, no redness, nor heat. According to the CF centre, it is not an inflammatory syndrome. Nevertheless the pain is very real, calmed by Acetaminophen and relieved temporarily by massages. Have you an idea of what it could be ?
- 18.01.2011
- ABPA and big repairs at home
- We plan to have big repairs in our apartment. For years, our daughter has been treated for ABPA. She will leave the apartment in order to avoid any aspergillus contamination. Our question is when should she come back after the end of the works: how long should we wait to avoid any recontamination with an aspergillus still present in the air?
- 18.01.2011
- nutrition
- Dear expert team, I have a question about nutrition in CF. In general it is said, that the increased calory need in CF should be covered especially with an increased intake of fat. But: increased fat intake means of course also a more intensive repletion. Now it is known for years, (only the german society for nutrition (DGE) does not seem to know this...), that for healthy people the intake of (healty) fats should not count for "fat-makers" - as it is postulated very often- but rather the carbohydrates count as "hunger-makers" (due to the reaction of the insulin) and therefore serve as a "fat-maker". Is there not the inversion of the argument right for CF patients: eat more carbohydrates? And as a consequence get more hunger? And as a consequence: eat more? Problems could occur of course with diabetes, but for non-diabetic CF patients this would probably be the easy variant to come to a better weight?
- 18.01.2011
- Journey in Peru
- I am a cystic fibrosis patient. I’m 27 years old. I would like to travel in Peru. As I read some people are sick because of altitude, I would like to know if this journey is recommended for cystic fibrosis patient. I have a good respiratory function (between 80-100%) and never had oxygen supplement. Thank you for your advices.
- 13.01.2011
- Sleep disorders
- In young CF children (2-3 yrs old), is there more sleep disorders secondary to gastrointestinal troubles?
- 13.01.2011
- genetic tests
- Where can be done genetic tests for both, in order to find if we are genetically compatible? we want to have a child and I had a miscarriage (loose a pregnancy in 6 weeks), without any reason.
- 13.01.2011
- vitamins
- I want you to tell me what vitamins could I give to my little boy with CF, what can be found in Romania or in Europe (the U.S. brand is called ADEK)
- 13.01.2011
- flixotide
- Hello. I have a child with CF and my doctor recommended treatment with Flixotide. I have given two ampoules / day for 5 days but as I did not understand well, I am not sure if this was right. Then I read the prospectus and I am afraid of adverse effects on children.
- 13.01.2011
- Hygiene
- Hello, MRSA can be as is known transmitted via the hands. New numbers from the internet (paul ehrlich institute, Germany) say, that 22% of the average population are MRSA carriers. Does that mean that one gets infected with MRSA in the short or long runs - and therefore become also a carrier? Or are the carriers not infectious for others, as long as they do not have open wounds etc. ? Where does the main risk lie to get infected? Many thanks for your answer.
- 11.01.2011








