Topics

bacterium (Stenotrophomonas maltophilia)
Should a 2 years-old CF child with a newly diagnosed Stenotrophomonas maltophilia in sputum be systematically treated with appropriate antibiotics ? This child who chronically coughs has a current cough increase. On the other hand, we have in our circle of acquaintances a person with a tracheotomy that we rarely visit. Should contacts be totally avoided ? Thanks for your response.
10.01.2011
Rectal prolapse
Is it possible to operate a rectal prolapse in spite of liver cirrhosis and enlarged vessels in the region of the bowel?
10.01.2011
29 years unrevealed illness of CF?
Dear ladies and gentlemen, I am female, 29 years old and suffer since birth from recurrent pulmonal diseases. Bronchitis, pneumonias, pleuritis... When I was 11 years old the left lower lobe of the lung has been resected and then I did relatively well. In spite of the operation I still have about 80% FEV1. However, since 2006 I have a worsening. Since then I get constantly other things, too. Fructose-intolerance (not inherited but acquired), chronic gastritis, chronic inflammation of the saliva glands, pain of the pleura, sickness and abdominal pain (which comes probably from the gastritis, as the enzymes of the pancreas are o.k.), under-weight (which has not been there before)...and the permanent infections of the lung (every 2-4 weeks fever). A genetic test has been performed comprising 92% of the CF-allels present in the german population, with the result that no mutation has been found. But somehow my mysterious symptoms puzzle me and I would like a sweat test having done for sure. Would this be advisable? Thank you very much,
10.01.2011
transpiration result
My child (2 years 5 months) had a sweat test result; the result was 46 ... so we found about this disease. I learned that the test should be repeated to know for sure ... The question is: if 2 days before the test the child was about two days infusion of NaCl (+ glucose and some magnesium because he had deficiency in his body), it is possible to influence the Na and Cl concentration in the test?
10.01.2011
burkholderia stabilis
what is this bacteria? where can you get it? what is the treatment? what is the prognosis?
17.12.2010
Vitamin D
Hello, Cold you tell me how much of vitamin D (in unit) is required for a 2 years old child with CF and pancreatic insufficiency. Thank you
14.12.2010
Essential oil
Hello, I am the mother of 2 children. A 5 year old boy and a 2 year old daughter with cystic fibrosis. I am a supporter of essential oils and use them to treat (and also prevent) my son since he is 2 (because it is too strong to be in contact with the skin earlier) eather in massages (with vegetal oils) or diffusion. Can I also treat my daughter with these oils? On her skin ? By diffusion ? Thank you for your answer
09.12.2010
Transmission of fungi
I Would like to know if two CF transplanted patients could be girl and boy friends even if one takes a treatment against fungi and the other no.
09.12.2010
Moderate CF
Is moderate cystic fibrosis susceptible to deteriorate ?
09.12.2010
Sphingomonas paucimobilis
Hello, in the last throat swab of my daughter (2 years) the germ Sphingomonas paucimobilis has been found. Now she should take 2 times a day 2ml Ciprofloxacin solution 5% for 14 days. Could you please tell me, if this is a really persistent germ? Is there the hope that she gets rid of it again and how problematically it has to be regarded? Where does one get such a germ from? The center wrote to me that it is not a bad germ, but has to be treated though. Somewhere I have read that this germ belonged to the species of Pseudomonas before, but sometime has been separeated from it? Many thanks and best regards.
09.12.2010
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