Topics

Pseudomonas aeruginosa
Hello, I am 50. I was recently diagnosed with cystic fibrosis (ENT and bronchial symptoms with bronchiectasis). During my first check up, mucoid Pseudomonas aeruginosa (10 to the power 5) was found in the bacteriological examination of sputum. Is there any treatment to consider? Is it a resistant bacterium? Am I dangerous for my entourage: babies, children, immunocompromised persons? Thank you for your response.
30.11.2010
cystic fibrosis
Hello. My name is Gabriel and Negus from Constanta. My son David is 1 year old and was recently diagnosed with cystic fibrosis. He started the treatment but we are still unclear on one aspect. His belly is still large, despite the treatment. We give him Kreon (one tird of tablet, every meal - doctor reccomandation). What can we do?
30.11.2010
dexamethasone
Hello, What side reactions has dexamethasone? It is possible to increase blood sugar?
29.11.2010
about swine flu
i have a question about the "hysteria" of swine flu .. what to do in this situation, we as parents? should we keep children (those with cystic fibrosis) home, even if in their school are not registered such cases? my child tells me that everyone around him sneeze, cough and I am afraid to leave him at school in May! also I have a question regarding the vaccination of children with cystic fibrosis .. where will they receive the vaccine? these children will have given priority considering their respiratory problems? Thanks in advance!
29.11.2010
Fat and liver
My daughter is 4 years old and should take in additional fat with the food (butter, olive oil). At the moment, there is the suspicion that there is a change of the liver (outer form) and she gets tablets, which should accelerate the excretion of fat. For me this is a total contradiction, or not?
29.11.2010
CF and celiac disease
Dear expert team, is there a correlation between CF and celiac disease? Would it be possible, that the bowel is damaged in an undiagnosed CF in that way, that it gets extremely hypersensitive and shows similar symptoms as celiac disease? My hope is still that in well adapted creon dosages the diagnose of celiac disease becomes invalid someday. Thanks for your efforts!
29.11.2010
Amiloride therapy
Hello, my 14-year-old son has Burkholderia Cepacia for about 2 years. After the iv-therapy in March 2010 as well as in June 2010 were not successful, one has the hope now to get rid of the germ with an amiloride inhalation quasi as an "intensifier" in parallel to the TOBI inhalation and the intake of Ciprofloxacin 750 mg 2 times a day and cephalexin 1000 two pieces, two times a day. In your question Archive there is up to now nothing about amiloride. I would like to be informed about potential side effects and to be encouraged with success, as I do not feel comfortable with such amounts of drugs. (DNAse is part of his daily life anyway). The therapy should last at least half a year and run with the cycle of 20 days-1 week pause - 20days - 1 week pause... Many thanks for your answer.
29.11.2010
Side effects of vancomycin
Dear expert team, at my last visit at the CF-center, MRSA has unfortunately been detected in my sputum. We decided to start an eradication trial with linezolid orally and in parallel vancomycin i.v. At the first dosage of vancomycin (Perfusor syringe pump was running with 50ml/h) the skin of my head started to itch about 20 minutes after starting, to get red and to burn, which spreaded in the end to the back and neck. My doctor stopped the infusion and gave me cortisone and clemastin i.v., whereon the symptoms subsided after a few minutes. According to my doctor, I have an allergy against vancomycin, so that the treatment with it was discontinued completely and instead tobramycin was given. I have occupied myself a bit with the side effects of vancomycin and have come across the Red-man-syndrome, which symptoms would fit here, too. It is said to be independent of anaphylaxia and should subside on its own with a reduced infusion speed resp. after several courses and after termination of the infusion. As the choice of antibiotics is anyway very limited because of the MRSA, I find it difficult to abandone for all times another drug because of a bit itching of the skin of the head which probably would disappear of its own. I am aware of course, that you can not estimate from the distance if it would make sense in spite of the known risk to give the drug another time and that the decision has fianlly to be made by my treating physician. Nevertheless, I would be interested in furhter medical opinions about the symptoms that occured to me and in informations about the Red-man-syndrome in contrast to an allergic reaction. Furthermore, if and in how far a termination of the therapy in case of such reactions represent indeed the suitable and only measure or if in general not also for example a reduced speed of the infusion for testing purposes would make sense. Many thanks for your help in advance. Yours sincerely,
29.11.2010
X-ray or MRI
Dear expert team, in my CF-center, once a year an x-ray of the lung is done routinely. Does this is at present still the standard procedure or would an MRI not be better, as with this for example the bronchiectasis could be diagnosed better resp. MRI is overall more conclusive? Also with regard to the radiation, I would prefer an MRI, as there is no exposure to x-ray radiation with that for me. What is your opinion? Many thanks in advance for your answer.
23.11.2010
Spreading of viruses
Dear expert team, it is the time of colds again and it also got me right. In the waiting room of my general practitioner I observed that nearly all patients coughed in their hands and touched the doorhandle afterwards. Now I ask myself, if it is known, how long the viruses survive on smooth surfaces (doorhandles or banisters)? Do I really take the viruses in my hand when using the doorhandle? I try to stick to "no handshake", would however wish that many more persons would cough in the crook of the arm. Many thanks for you efforts. Yours sincerely,
23.11.2010
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