Topics

Crumpled hands in case of water contact
I have just followed the question resp. the answer with interest. It strikes me that my daughter (2 years old) also shows very fast crumpeling of the hands when she is taking a bath, I just have read that this phenomenon is found also in carriers, even if it is not so distinct. Our other daughter (4 years old) does not suffer from CF, now my question, in what range of time do the hands get crumpled at a gene-carrier in comparison to the "non-gene-carrier"??? Can one make a comment on this at all? I know that this is not a secure statement about a carrier or non-carrier. But I find this a rather interesting phenomenon. Thanks
05.10.2010
Nasal polyps
Our child (9 years old) has nasal polyps in the right side of the nose. According to the opinion of the ENT-doctor, only in the ethmoidal sinus. The left side is free. For about half a year we are taking a cortisone containing nose spray without achieving a change of the polyps. Now an MRI is going to be done, in order to see everything in more detail compared to the ultrasound, however we have already been told, that it will probably come to an operative resection of the polyps. Are there any alternatives, that we could try before? Many thanks for your answer.
05.10.2010
Hyaluronic acid
Hello, on the 1st of September it has been in the media, that hyaluronic acid plays an important role in CF. (http://www.idw-online.de/pages/de/news384304). Can this give rise to hope or is it rather uninteresting for the patients? Many thanks for your answer.
05.10.2010
Can carriers of the CF gene can also have CF-like complaints ?
My daughter has serious lung problems and after many tests the conclusion is that she does no suffer from cystic fibrosis, but my daughter is a carrier. Can this contribute to her lung problems or is it not part of it ?
05.10.2010
CF or not ?!?!?
As baby I was tested for CF. Now I’m 36 years. After long considerations and more testing I received the final answer “no” but with obvious hesitation in the physician’s voice. My whole live I’ve been tired, I have mucus, suffer from sinusitis, I always have a cold and I always have a lot of stools. In the end I found a physician who diagnosed mild CF, and there are further investigations being done. I would really like to know whether I have CF or not. Thank you for your answer.
05.10.2010
Hygiene
I’m writing an essay on cystic fibrosis. But I need to know more about hygiene. Can you help me ?
05.10.2010
CF
Our son and daughter-in-law recently had a child with CF. My family is wondering whether it would be sensible that I (grandmother) would investigate whether I’m carrier of the defective gen. They think that by doing so we can avoid further investigations in our large family.
04.10.2010
Paternity and CF
Hello, In most articles about artificial insemination in CF it is written that methods used are in vitro fertilisation (IVF) or even more likely intracytoplasmic sperm injection (ICSI). What about intra-uterine insemination (IUI)? Is this method not feasible for men with CF? Many thanks.
04.10.2010
Physiotherapist with chronic bronchitis
Dear CF-Team, Is there a danger for me as a CF patient to get infected by a phystiotherapist, who suffers for years from chronic bronchitis, via the contact in the frame of the physiotherapy? Best regards and many thanks
04.10.2010
Decontamination of the bowel in case of antibiotic therapy
Dear expert team, how can the intestinal flora be maintained in spite of an antibiotic therapy? Is this possible at all? If yes, which substances come into consideration? I have to take Ciprofloxacin capsules in alternation with Tobramycin-inhalations for one year. Many thanks in advance! Your answers are very helpful!
04.10.2010
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