Topics

Warm water supply and colonisation with Pseudomonas
Dear experts, From autumn we would like to move to a new apartment with our five year old son. Up to now the course of his disease has been rather mild, apart from occasional (2-3) cross colonisations with Staphylococcus aureus and Haemophilus influenza, which however did not show any symptoms. He did not have PA so far. With regard to the lungs our kid is inconspicuous, the frequency of infection is normal to low. So far our hygiene “catalogue” comprises the general proceeding and have tried to lead a life free of hystery: in the mornings we let the water run a while from the tap, we keep the toilet lid closed, we wash our hands regularly and stay away from standing waters. In our new apartment there will be no tankless instantaneous water heater for the water that we use like we had before, but an 80 litre boiler in the basement, which provides kitchen and bathroom with hot water (about 6 years old). For us it is concrete the question now, if we could life with such a boiler and which measures we have to take (which temperatures in the boiler? Constantly or only at certain times, about 3 times a week?), inorder to avoid the flow-rate with Pseudomonas. Or however, to give up the plan to move in this appartement as a last consequence.... Many thanks for your information (please as soon as possible as the leasing contract should be signed until the end of july).
04.10.2010
CF and tracheamalacia
Do people with CF have an increased risk of tracheamalacia ? Is the treatment the same ? Is there a link between CF and tracheamalacia ? Is it a disadvantage to have CF and tracheamalacia ?
04.10.2010
Info
My wife is CF patient We have recently heard that she is becoming resistant for several antibiotics. At the moment there are two kinds of antibiotics left. The bacteria that is causing most problems is the E coli bacteria. My question is whether there is a risk that my wife will become resistant for the last two antibiotics in relation to this specific E coli bacteria.
04.10.2010
CF and birth
Dear ladies and gentlemen, Currently, I am very desperate. I am pregnant in the 23+4 week and 2 weeks ago I have been told, that my unborn child is likely suffering from this disease, as at the prenatal diagnostics, which I have done according to the recommendation of my gynecologist, one has assessed a "sickle of fluid" around the bowel of the baby. I think that one can handle this disease in the normal case, now my question: what kind of therapy does the newborn need? I am afraid, that the baby girl is born and is instantly connected to machines! I would be very pleased for you help. Best regards,
04.10.2010
Correlation between MRSA and sinusitis
Hello, Since October I have a colonization of the lungs with MRSA. In the meantime the sputum results without antbiotic therapy or intervention from my side were negative from time to time. In the nose however, I have always very much green mucous and barks. Is it possible that I recolonize myself via my own nose again and again? How can I get my nose free of germs as gentle as possible? I use a drug with the substances verbena, elderflower, sorrel and primrose blossoms and the nose shower for monhts without that the problem disappears. Best regards and thank you again
04.10.2010
Formation of crusts and barks in the nose
Hello, I am colonized with MRSA and have the above titled problem since 8 years. Nasal showers do only relieve the symptoms. Could the inhalation with the Pari Sinus bring relieve and is it paid by the insurance? Many thanks
04.10.2010
Way of action nasal spray
Hello, In the internet pharmacy there are 2 different sprays: one with the substances dexpanthenol 10mg, sea water 250mg/ml and one with the substances natriumchloride-solution, isotonic 1ml/1ml. What is the difference between those 2 in their way of action and can both be used for a longer period of time? I have massive problems with the formation of crusts and barks since the last operation of polyps 8 years ago. According to the recommendation of the ENT-doctor I use a drug with the substances verbena, elderflower, sorrel and primrose blossoms and use the nasal shower. Which of the 2 sprays you would recommend to me? Many thanks for your answer
04.10.2010
Question concerning hygiene with nasal spray
Hello, via the search function I have just got the information, that it would be the best to buy products such as nasal sprays in the pharmacy. I use nasal shower and recently bought a sole sea water nasal spray in the drugstore. In the package leaflet it was written, that the spray should be used for no longer than 6 weeks. Now I am worried, that germs could raise within this time (Pseudmonas or others). What is your opinion about this? Can one ever use the spray without worries and if yes, how long? Many thanks for your answer.
04.10.2010
Outpatient clinic Prague / Czech Republic
My daughter is going to travel to Prague. Could you provide me with the contact details of an outpatient clinic in Prague / Czech Republic for the case of urgency? Many thanks! WK
04.10.2010
Nasal douche
Dear expert team! Our son (7) has a nasal polyp on one side. Currently, it is treated conservatively… our CF doctor supports regular nasal douches. Our ENT physician is against it since he thinks that the mucus might be mixed with bacteria and then might run to other areas. Which are the benefits and which the inconvenients of the nasal douche? Many thanks,
04.10.2010
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