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Tags
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- Maintenance therapy
- How is the decision made whether a maintenance dosis of antibiotics is prescribed to babies and young children ? I think that this is not done routinely? Have there been studies in this area? What are the pro’s en cons of maintenance antibiotics therapy ? Why is there so little known about the correct treatment of babies ?
- 14.09.2010
- Plastic surgery
- Hello, I am 19 years old and I have CF. I am pretty petite and therefore my bust size is very small and I have been suffering from this for years. In general, is there anything to be said against having a breast augmentation done by plastic surgery for a CF individual? Thank you.
- 14.09.2010
- Cystic Fibrosis
- My daughter is 6 years old and since three years she has complaints that look a lot like cystic fibrosis. She has it the whole year through from October till July. During the summer months she has no problems whatsoever. Is it also the case that people with CF have less problems during the summer months ?
- 14.09.2010
- CF
- If you have been tested for CF as a child and this result was negative, can you then still get cystic fibrosis later on.
- 14.09.2010
- MRI with cystic fibrosis
- We were advised to do an annual MRI for our son (9 years old, CF). What are the experiences with that and is this harmful to the body? We also want to add that our son does not have any lung problems and his lung function is always good. Many thanks.
- 14.09.2010
- Genotype in CF
- My two grandsons (one 18 months, the other 4 years) have CF with genotype F508del (egzon 10) and S466X (egzon 10) in CFTR gen. Can you tell me to which class of mutation belongs S466X and what are the prognosis for the children with this genotype.
- 14.09.2010
- genetics question
- My daughter was found at age three (she is now nine years old) to have the mutations F508 and 711 3a G. At time she has not experienced any significant lung involvement ( a few episodes of bronchitis) and she is pancreatic sufficient. I would like to ask what is the phenotype and the relative progress of these children with these mutations? Is this atypical CF? Is there any information on this second mutation? Thank you
- 14.09.2010
- Querries
- (a) In less than twelve months a baby has undergone sterilization and a few months later is on ciproxin & tadim again. Does this mean that pseudomonas has settled for good and the real pulmonary problems have already started, or is it just symptoms? (b) How much does the medication affect the body in the long term? Apart from the CF related issues, will there arise other problems due to the medications?
- 14.09.2010
- Attestation by doctor is denied
- I am 16 years old and have CF. I will begin secondary school this autumn. I have heard that I have the right to get “färdtjänst” but my doctor does not want to write an attestation since no one in Gothenburg or Lund has “färdtjänst” to school. Is there anyone who has similar problem and how have you solved it?
- 13.09.2010
- Paddling pool (children's pool)
- Would it help to put chlorine tablettes into the water of a paddling pool to leave the water for 2 to 3 days in the pool? Our pools contains 75 L of water and it is merely a question of costs... Many thanks
- 13.09.2010
