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Tags
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
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- reproduction
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- swine flu_novel influenza
- transplantation
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- ventilation
Topics
- genetics
- In my 5-month-old daughter CF was diagnosed and mutations 3849+10kbC>T/2143delT were detected. I can't find any information about the second mutation. So far my daughter has no symptoms. On the basis of these mutations, can one predict the course of the disease: mild or severe?
- 14.04.2010
- inhalers
- Hello, I would like to buy for my child a portable inhaler, which of the inhlares accessible in the market is good for CF patients? I admit, that I wouldn't like to buy a very expensive inhaler. The child is 9-year-old and has hypertonic salt and pulmozyme inhalations.
- 14.04.2010
- drainage methods
- Hello, I would like to ask, which drainage techniques can be used in a 9-year-old child to make the child more self-dependent. I have to add, that the child cooperates well, does not expectorate a lot of secretion even during exacerbation periods. Currently we perform bronchial drainage in different positions and compression.
- 14.04.2010
- Humidity in the bathroom
- Dear expert team, we are currently looking for a rented apartment and have realized that only very few of those offered come with a window in the bathroom/toilet. Since our 12-year-old son has chronic PSA, this has been a knock-out criterion for us up to now (the possibility to air the bathroom by opening a window has been a priority). Are there any reliable air exhaust options (possibly to be added retroactively) that could solve the humidity problem in a windowless bathroom? Which qualified companies would be the right contacts? Thank you for your advice.
- 08.04.2010
- MRSA
- Hi Muko-team, We have friends with a daughter who suffered from CF and died. She harboured MRSA! My parents have close contact with her parents after the death of the daughter and I fear that MRSA can also contaminate me, who has also CF. Is such a contamination possible? Is this a danger for me? Greetings
- 02.04.2010
- Race
- How come CF mainly occurs in the white race
- 23.03.2010
- DNA
- How many DNA variants are examined when CF is suspected?
- 23.03.2010
- Lung problems in CF
- What causes cystic fibrosis lung disease?
- 23.03.2010
- Numbers of patients with CF
- I read in a CF leaflet information on number of patients. 1.300 in the Netherlands, 23.000 in Europe and 25.000 in the US. The numbers are surprising and not related to the population in the different continents. What is the explanation: social standards, healthcare in the specific countries or parts of the world. Or is there an issue of registration?
- 23.03.2010
- Late diagnosis
- I would like to pose the following question. Our 16 year old son has had sinusitis for years, for which he was operated on twice by an ENT surgeon. He’s also known with bronchitis. Additionally he has regularly tummy-aches and diarrhea. All together, he doesn’t have worrying symptoms, he does daily sport and has a normal development. Because of the persisting ENT problems, the ENT surgeon consulted a pediatrician and a sweat test was done twice, both times with low positive chloride (57?). Additionally blood was taken for DNA and I now worry. Is there a chance that a child with normal development and already 16 years old of age would have CF only now. Thanks for your answer.
- 23.03.2010
