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Tags
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
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- oxygen supplementation_therapy
- physiotherapy
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Topics
- Periodic i.v. with chronic PSA even for children??
- Dear Mr. Rietschel, thank you very much for your elaborate and comprehensible statement on the question of the "Danish model" with an 11-year-old with chronic PSA. From your point of view, what do you think of the following counter-arguments from the CF center? - with 3/4 times i.v. per year, our son's veins will be busted in a few years (port during puberty -- not a stunning prospect) - hearing and the kidneys will be affected - i.v. will cause resistances - with an FEV1 of just under 100%, no measurable improvement can be expected - quality of life/school will be strained Then rather every 6/8 weeks lung function + pap smear + possibly azithromycin and i.v. with the next infection anyway??? To us, all arguments for/against i.V. comprehensible, which is why we are having such a hard time making a decision... Many thanks
- 05.01.2010
- Advice
- I am in the 6th month of my second pregnancy and I just found out that my husband is a carrier of the CF gene. My first child has now shown any symptoms and I believe it is healthy. Should I be tested for CF, or should I let things run their course, since my pregnancy is advanced and my first child is healthy?
- 05.01.2010
- ΔF 508
- Hello. After having an amniocentesis during my first pregnancy we discovered by chance that the fetus was a carrier of the DF508 CF mutation. We do not know which one of us is the carrier. I am pregnant now in my second child. My question is should we have testing for this mutation only, or for all the CF mutations? Thank you.
- 04.01.2010
- Flu vaccine
- My son has C.F. Can you tell me if he should get the new flu vaccine?
- 04.01.2010
- Please review the answer to the question: Repetition of H1N1 vaccination
- Dear expert team, Personally, I think that the answer given by Prof. Ellemunter is not correct. The current recommendation for Germany says: children are vaccinated with a half dose rate of the vaccine and receive the second vaccination about three weeks later (the second half dose rate of the cumulative dose). This recommendation applies to the vaccine with adjuvants that is used in Germany. A vaccine without adjuvants is currently not available for the vaccination of children and of the average population in Germany. Best regards, C. Röder
- 04.01.2010
- Phlegm production
- Good afternoon. 1.5 month ago I had bronchitis and had 2 courses of antibiotics. However, I still have phlegm. And have back pain in the area of the lungs. 3 weeks ago examination of CRP showed 0. Is it possible that these symptoms are result of severe bronchitis and they will resolve spontaneously? Thank you for the answer.
- 04.01.2010
- Swimming pools
- Does swimming in a normally chlorinated swimming pool bring extra risk of getting infected with bacteria?
- 04.01.2010
- Lung transplant
- I am 21 and suffer from CF. In September 2008 I had a transplant and since the transplant I continuously feel sick to my stomach. I am nauseous, especially after the evening meal. My doctor prescribed Domperidon but I don’t have the feeling that this helps sufficiently. Because I feel nauseous all the time, I eat less and less to avoid that problem. What else could I do to avoid being nauseous?
- 04.01.2010
- Swine flu vaccine
- Dear expert team, there are two vaccines against the new influenza A (H1N1): Pandemrix® (with adjuvants) and Celvapan® (without adjuvants). As a CF patient, would it not be better to prefer the latter in order to reduce side effects? [Translator's comment: information specific to Germany was omitted in the translation.] Regards
- 04.01.2010
- Obliterative bronchiolitis
- I have CF and was lung transplanted 2002. I have been doing fine until this spring. At that time the lung function values started to decline without any obvious reason. After two bronchoscopies in this autumn due to continuous decline of FEV1, my physicians have stated that I probably have “bronchiolitis obliterance”. I wonder if it is common for lung transplanted CF-patients and what the experience is regarding treatment and progress of OB?
- 04.01.2010
