Topics

2 times bronchitis
Hello, I have had two bronchitis in two and a half months. Does it mean that I have cystic fibrosis because I had a lot of bronchitis in the past? Thank you
14.02.2017
Cough
Hello, What is the cystic fibrosis characteristic cough? After a pneumonia, can a chronic but daily dry cough be thought to be typical for cystic fibrosis? Thank you Best regards
14.02.2017
Onion
Hello, I heard that onions could be harmful for the CF patients because they might contain the B. cepacia bacteria. Can we still eat it? Even raw? Thank you for your answers.
14.02.2017
History of Cystic Fibrosis
Hello, I would like to know if cystic fibrosis has always existed since the appearance of human beings on earth or, if not, about which century this disease appeared. What evolutionary process has led to a genetic error on the CFTR gene? Thank you very much.
14.02.2017
Great cold exists
Hello, We have our 8-year-old boy with Cystic Fibrosis and we live in an area where the temperature can fall below -20 ° C. I would have liked to know at what negative temperature he could go outside? I take him to the bus in the morning by foot and then in the evening we come back from the bus by foot and at school there are recreations. I cover him well hood + muffler then ski coat but I'm afraid that the cold will damage his lungs. Thank you in advance for your answer. Cordially
14.02.2017
Genetics, healthy carrier information
Hello, I ask myself this question: is it possible to know with the guthrie test if a baby is a healthy carrier of a gene causing later cystic fibrosis for his children and in this case if the families are warned. Thank you for your reply. Best regards.
14.02.2017
Posterior rhinorrhea
Hello I have heard that in CF the posterior rhinorrhea is frequent. Why is it posterior and not flowing through the nose? Are the secretions purulent or on the contrary clear? What are the symptoms for a baby? Cordially
14.02.2017
Mild forms
Hello, I am the mother of a 8-month-old little boy with cystic fibrosis. It is said that he has a mild form of the disease ( f508-r347h ) without pancreatic insufficiency for now. He has no other symptom than a loss of salt. His disease took time to be detected because the low level of sweat chloride (31), was almost normal. I am very worried for the future. I can’t have any straight answer when I ask the CF center about his disease evolution neither the symptoms' appearance. I am told that everything is possible, from a simple infertility, to an evolution towards a classic form of the disease. When can we say that the disease will indeed be mild (what does mild mean) and his life expectancy will it be the same than that for a classic form? Thank you for your answer!
06.02.2017
Mutations
Hello Could you give me some information about the mutations F508delta and S466X. I know that some touch more organs than others. Thank you
06.02.2017
How long taking antibiotics?
Hello, first of all thank you very much for this expert forum. It is a great help! If an antibiotic therapy with cefuroxim has been intiated in CF child that had initially a viral infection that has been superinfected by bacteria (Moraxella catarrhalis, H. influenza) and the symptoms (rhinitis, subfebrile temperatures, reduced general state) have disappeared after one week, and the status is good again, only a slight residual cough remained, can the antibiotic therapy be finished soon? Or is there a reason, to continue the therapy for 3 weeks? With every day, the selection advantage for resistances or problematic germs is growing, isn't it? Should one therefore not limit the antibiotic therapy to "end of symptoms + a few days" instead of giving just at the beginning an overall duration of 3 weeks, even if the infection was over after one week? Many thanks again for your time!
06.02.2017
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