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- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
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Topics
- c.3121-2A
- Hello, after 1.5 years of running from one doctor to the other finally a sweat test had been done and a CF had been diagnosed to our son. From the father came the Phel508del- and from the mother the c.3121-2A G> mutation. Is there any experience with this combination? Since we give Kreon to the meals, our son seem to develop normally and looks good. Greetings
- 16.11.2009
- Mine / flowstone cave
- Dear experts, can a CF student go to a mine and a flowstone cave during a school excursion, or is this not advisable due to the germ situation? I would particularly imagine the flowstone cave to be a germ source par excellence. Thank you for the information.
- 10.11.2009
- Single room at the hospital?
- Hello, hue to nightly cough, digestive problems (specifically: flatulence) and the fear of infections I would feel much more comfortable getting a single room when being admitted to the hospital. Is this advisable/necessary from a hygiene perspective (own bathroom and toilet) as well? Best wishes.
- 10.11.2009
- Keyword ventilating system
- Concerning ventilating systems there have been already several answers, which deal however, from my point of view, with a so-called central device. We run a decentral ventilating system, that means the supply air comes directly form the outside, the warmth is taken out of the used air and is given into the heating. I can not see how a colonization with germs should take place with this system. Or are you of a different opinion?
- 10.11.2009
- Hygiene with oxygen
- My question deals with the humidifiying of oxygen. On the one hand there are the Perlan-humidifier, which have to be filled with boiled water or the destilled water (Respiflo). Which is more sensible with an increased incidence of infections? And can the destilled water be reused after standing still for some days? Many thanks for a quick answer.
- 10.11.2009
- Swine flu vaccination
- Hello, should CF patients (son, 9 years) be vaccinated against the swine flu if there is the possibility? Many thanks for your answer
- 10.11.2009
- Vitamin D
- Hello, dear experts, The book „Heilkraft D“ [German title: “Heilkraft” could be translated with: “healing power”] of Dr. Nicolai Worm lies in front of me: basically, it says that vitamin D deficiency is responsible for all kinds of diseases (not for CF, that is clear, but for cancer, heart attack, etc.). And his designated threshold values are much higher than those usually recommended. Our CF patients are usually supplemented, our adult son with 1000 I.U. daily. However, the actual 25-OHD value is never checked… shouldn’t it be seen as well? And: Which values are optimal in your opinion? Thanks for your answer.
- 09.11.2009
- Side-effects of the inhalation of hypertonic saline?
- Dear CF-team, I inhale 5.85% sodium-chloride solution (2x3ml per day). With that I realize, that more mucus is mobilized. My question: does hypertonic saline mobilize only more mucus or can the inhalation of hypertonic saline have also negative effects, that means increases the mucus production? In case the production of the mucus is not increased, how many ml per day is the permitted highest dosage according to your recommendation? Best regards and many thanks in advance.
- 09.11.2009
- Also CF?
- My daughter is 14 years old, and physically disabled (exstrophy of the cloacae). In the last years she has had many pneumonias, often bronchitis, problems with diarrhoe...In the mean time she has been diagnosed with: extreme short stature, asthma, celiac disease (not approved via investigation of the bowel), furhtermore difficult feeding because of FI, LI, [the translator did not know what that two abbreviations mean], problems in digestion of fat (but: child because of diverse operations of the abomden near to a short-bowel syndrome), chronic sinusitis, malnourishment, scoliosis, need of oxygen at night because of dips of the saturation due to periodic breathing, delayed puberty... Now a sweat test should be done to her soon. My question: is it really possible in case of a mild course of the illness, that CF is not recognised in a regularly observed 14-year-old child by childrens'surgeonts / pulmonologists/ endocrinologist and other physicians, in spite of regularly performed thorax x-rays, blood-/ stool investigations? Many thanks for the answer
- 09.11.2009
- Hygiene of a lose brace
- Dear expert team, how is the best way of keeping a lose brace free of germs? Can it be disinfected in the vaporisator (how often??), do the metal strands stand it?? Has it to be cleaned with disinfectant?? Many thanks for your answer
- 09.11.2009
