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Topics
- fibrosis
- My parents told me that they put my bed more upright because I had a lot of secretions. Years later, after a lot of worries with my health it was concluded that I had fibrosis in my throat and quite a severe form. This became apparent after removal of a nerve when my molars were being extracted during general anaesthesia. I’m now four years past that last surgery and have a lot of difficulty eating and I sometimes feel short of breath and I’m very much affected by certain weather conditions. In my case, do you then speak of CF or what should I think because there is very little quidance in this field. Joanna
- 13.10.2009
- Mexican flu
- Dear, I’m a 25-year old patient with CF and I’m worried about the Mexican flu. Can I protect myself from it ? Should I take antiviral drugs before I leave on holidays, are there countries that I shouldn’t go to ? What should I do if I start feeling ill? Thanks for your answer.
- 13.10.2009
- Breakfast
- Dear expert team I have question regarding a healthy breakfast for person with CF. My son is used to have nut wedges for breakfast – we cannot bait him with bread, cereals, fruit or anything else. Well, nut wedges are high calorific food for sure – but is sugar in such an amount okay? He does not have diabetes. Thanks for your answer.
- 13.10.2009
- Cystic Fibrosis and kidney
- Dear expert team, Is there a relation between renal function and Cystic Fibrosis? I have heard that CF can be cured by doing special cleaning and lavage of the kidneys. I myself do not believe in this, however I would like to hear your advice. Thank you in advance.
- 13.10.2009
- Pharmacokinetics of Tobramycin and Ceftazidime
- I am a medicines information pharmacist at Alder Hey in Liverpool and I have been asked to look into the evidence behind the use of twice daily IV tobramycin and ceftazidime, which one of our shared care centres uses. I can see in the CF trust antibiotic guidelines it states that the total daily dose of ceftazidime can be given in two divided doses but it does not mention this for tobramycin. I was wondering if you have any information on the evidence behind giving these drugs twice daily instead of three times a day or once daily for tobramycin and is there any data on the pharmacokinetics of these drugs in CF patients?
- 11.08.2009
- Re: PeP - therapy or flutter?
- Dear Mrs. Koenecke Many thanks for your quick answer. Unfortunately the physiotherapists of my daughter are not agreed. In the center for CF in Verona, where my daughter is cared for, they say we should use the PeP-mask. We do this, but it does not seem too efficient to me. My daughter has actually never secretions, since she has started an antibiotic permanent therapy (every 2 days Azithromycin) and since we inhale 2 times a day cortinsone and salbutamol. Before, we did not have to inhale, neither to take antibiotics. Only since the springtime this is necessary, as she had often infections. We are now insecured, as our physiotherapist in South Tyrol regards the flutter method as more efficient. Also the percussion has been taught to us in Verona, but she does not like it at all and our therapist here says, this is not efficient at all. So now we have 3 forms to choose: flutter, PeP and percussion. What is the pursed lips breathing? I thank you very much for your efforts. I just want to make myself a more detaild picture....
- 11.08.2009
- Hospital staff and nursing staff
- Hello, I have seen a statement in the internet (however in a not quite qualified forum) which did alarm me. A nurse states there, that about 80% of the staff in German hospitals were carriers of the MRSA. Even if the exact number is not as high: It would interest me if the hospital staff is overall regularly tested for MRSA and which consequence a positive finding has. Is somebody, who carries the MRSA, allowed to work in a hospital? Can for example a correct hand hygiene prevent that an "MRSA-positive" doctor (nurse etc.) transmitts the germ to his patients? MRSA is going to be registrable at june according to the internet: what does change for the patients due to this? Many thanks for your answer.
- 11.08.2009
- Hospital- and nursing staff, the second
- Please see question "Hospital- and nursing staff" as this comprises both questions and answers.
- 11.08.2009
- i.v. therapy regularly in case of chronic PsA??
- Dear Expert Team, My 11-year-old son contracted PSA 16 months ago (i.v. therapy in June 08 was not successful). Antibodies in serum were positive in April 09. FEV is 92%, and my son is very fit (no secretion, no cough, X-ray negative, good weight). Is there a recommendation for children to: - choose the Danish model, or - do annual prophylaxis with positive antibodies, or - depending on the clinical condition, 1. (next i.v. therapy at FEV decrease to what percentage? My son does not always blow evenly strong.) 2. would a lung function test every two months or earlier be a compromise??? Many thanks for your assessment.
- 11.08.2009
- CF children chance
- Hello, Dear doctors , with respect for your work, I want to ask why our country can not follow the ''developed'' treatment scheme on CF? Our children prognosis is painful for us , while abroad patients live 40 - 50 years a relatively normal life? Why doctors from other cities treat disease with trienzime instead of kreon? Because of unjustified pride, children are treated superficially, not to discuss physiotherapy, eg. of respiration, the spittle. My niece (5.7 months) has piocianic and treated with antibiotics . Her disease get worse and we managed to get appointment to a clinic in Verona. The doctors from there were stunned by the treatement received by our child .I ask you to spread in country your knowledge, performance and education, in order that all physicians to be aware !
- 10.08.2009








