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Different laboratories - different results of sputum investigations
Dear expert team, I have a question concerning germs in the sputum. About one time a year there is an investigation of the sputum in the CF-center, where in the last years Pseudmonas (different types) have been detected each time, in the sputum as well as in the nasal secretions. Furthermore, there are inbetween (about 3-4 times a year) investigations of the sputum performed at the pulmonologist locally (different microbiological lab than the CF-center). Here the Pseudomonas is detected very frequently (also different types of Pseudmonas) as well as other germs (e.g. sp. Stentrophomonas, not exactly describable gram-negative germs). Once a year the general practitioner performs an investigation of the sputum (again a different laboratory). And here, until now, a Pseudomonas has never been detected (and no other germs either), but only Hämophilus influenzae resp. H. parainfluenzae. And once a year a sputum investigation is performed at the rehabilitation hospital, where until now never a Pseudmonas has been detected either or another germ except the normal flora. The Pseudomonas at the other laboratories is mostly found in small numbers, the Haemophilus always in great numbers. It has to be mentioned, that the laboratory of my general practitioner is screening also for Pseuomonas. The Hämophilus is only found in the laboratory of my GP, in the other labs it has until now never been detected. Now my questions: How can this course be judged? First of all there is the question of a chronic colonization with Pseudmonas yes or no. And furthermore I am wondering, if one should probably take something into account with the sputum samples. Or are there such great differences between the laboratories concerning the technique of investigation? The last question is, if it is possible that the Hämophilus smoothes the way for the Pseudmonas? Because the Hämophilus is always detectable in the suputum investigation from may, the Pseudmonas of the laboratory of the CF-center respect. of the pulmonologist is detectable in june-august. 2-3 times a year an i.v. antibiotic therapy is performed and continously now the intake of azithromycin. Many thanks for your efforts and answer
03.08.2009
Mutation
hello, I want to ask how severe is a mutations combination - compound heterozygout for F 508 del and 3849+10kbC>T and what course of the disease could we expect in future? these are mutations of my 1 year old daughter. Thank You for an answer.
30.07.2009
Relevant question for nurses
As a nurse in training I need to ask ‘a relevant question about a 12-year old boy with CF. I find this a difficult task becaus I never really get in contact with children during my training. What is important to a nurse who is envolved in the care of a patient with CF?
28.07.2009
Cystic fibrosis death and IVF
Two years ago my sister died from CF. I would like to know if the fact that she was conceived through IVF mattered.
27.07.2009
CF Centre
I’m a 41-year old man and at young age they incidently discovered that I have cystic fibrosis. Because I’m not often sick not a lot was done about it. At a later age it appeared that my vas deferens is not well developed and recently (probably already several times) I had pancreatitis. On google I discovered a link with these complaints. I consider going to a CF centre but I’m afraid they will medicalize my rather healthy life. I aIso don’t know what the extra value of this could be.
20.07.2009
Cross infection
My daughter has CF and attends a private school. Another child with CF has applied to our school for the coming year. The children will be in different classrooms, but will come in contact in confined spaces (e.g. school bus, school theatre and feasts, some classrooms for elective subjects, break during bad weather, etc). Is there any risk for one child getting infected by the other, if one is colonized with pseudomonas? Thank you.
20.07.2009
atypical forms of cystic fibrosis
Dear experts, I would like to know more about atypical forms of cystic fibrosis and tests, especially forms with involvement of the digestive system and the pankreas. Are there forms of Mukoviszidose without an involvement of the lung or at least a very late involvement of the lung within the process of the illness? I read about infections with pseudomonas which do occur very often with this illness; is a long lasting infection with pseudomonas in a toe an indicator for cystic fibrosis? Many thanks in advance.
20.07.2009
no subject - treatment of Ps. aeruginosa
For how long should be Pseudomonas treated if my daughter has it for the first time?
16.07.2009
Acapella
Hello, I have a 15 year old daughter with CF and I am interested in Acapella device. What is it? Thanks.
16.07.2009
Salt cave
Is it good for a CF patient to stay in a salty cave? Is it beneficial for him? Thanks for an answer.
16.07.2009
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