Topics

no stool for 5 days
What should I do with my 4 mo child because he had no stool for 5 days?
10.08.2009
Adverse effects of pancreatic enzymes substitution
I take pancreatic enzymes substitution (Kreon 25000) for a long time (like many other CFs). Which adverse effects can I expect? Thank You for an answer.
10.08.2009
Plague on teeth
Hello, my daughter (8 years, CF) has a yellowish plaque on her teeth every day, difficult and on some places impossible to remove with a teethbrush. She is now for one year on Azythromycin 250mg every second day (she is not taking any other ATB). Is it possible, that Azythromycin is causing that plaque? If yes, how to avoid it (taking vitamins etc.)? Thanks.
10.08.2009
Journey to Thailand August 2009
Dear expert team, I am 23 years old and have a attenuated form of CF (lung function normal, never Pseudomonas, no resp. hardly any accumulation of mucus in the lung, do not need daily inhalation, I am doing extreme sports and have actually no restriction). And now I want to fly to Thailand in 2 weeks, for spending 4 weeks of holidays there. I have now heard about the germ "Pseudomallei" and I ask myself now, if I run a great risk when visiting this country! I do not plan to go into the deep rainforest or to visit any rice fields either, but stay at the sea shore. Yours sincerely,
06.08.2009
Aspergillosis or Allergic Aspergillosis
Which possibilities of treatment are there in Allergic Aspergillosis? What is the difference between Aspergillosis and Allergic Aspergillosis?
06.08.2009
Pari sinus
Dear expert team, which experience is present with an 11-year-old and the PARI SINUS (no adenoids but often greenish, viscous mucous and chron. Pseudomonas aeruginosa): Can also Tobramycin be inhaled in case of infection (if yes in what dosage) or other drugs?? Many thanks for your advice.
03.08.2009
Different laboratories - different results of sputum investigations
Dear expert team, I have a question concerning germs in the sputum. About one time a year there is an investigation of the sputum in the CF-center, where in the last years Pseudmonas (different types) have been detected each time, in the sputum as well as in the nasal secretions. Furthermore, there are inbetween (about 3-4 times a year) investigations of the sputum performed at the pulmonologist locally (different microbiological lab than the CF-center). Here the Pseudomonas is detected very frequently (also different types of Pseudmonas) as well as other germs (e.g. sp. Stentrophomonas, not exactly describable gram-negative germs). Once a year the general practitioner performs an investigation of the sputum (again a different laboratory). And here, until now, a Pseudomonas has never been detected (and no other germs either), but only Hämophilus influenzae resp. H. parainfluenzae. And once a year a sputum investigation is performed at the rehabilitation hospital, where until now never a Pseudmonas has been detected either or another germ except the normal flora. The Pseudomonas at the other laboratories is mostly found in small numbers, the Haemophilus always in great numbers. It has to be mentioned, that the laboratory of my general practitioner is screening also for Pseuomonas. The Hämophilus is only found in the laboratory of my GP, in the other labs it has until now never been detected. Now my questions: How can this course be judged? First of all there is the question of a chronic colonization with Pseudmonas yes or no. And furthermore I am wondering, if one should probably take something into account with the sputum samples. Or are there such great differences between the laboratories concerning the technique of investigation? The last question is, if it is possible that the Hämophilus smoothes the way for the Pseudmonas? Because the Hämophilus is always detectable in the suputum investigation from may, the Pseudmonas of the laboratory of the CF-center respect. of the pulmonologist is detectable in june-august. 2-3 times a year an i.v. antibiotic therapy is performed and continously now the intake of azithromycin. Many thanks for your efforts and answer
03.08.2009
Mutation
hello, I want to ask how severe is a mutations combination - compound heterozygout for F 508 del and 3849+10kbC>T and what course of the disease could we expect in future? these are mutations of my 1 year old daughter. Thank You for an answer.
30.07.2009
Relevant question for nurses
As a nurse in training I need to ask ‘a relevant question about a 12-year old boy with CF. I find this a difficult task becaus I never really get in contact with children during my training. What is important to a nurse who is envolved in the care of a patient with CF?
28.07.2009
Cystic fibrosis death and IVF
Two years ago my sister died from CF. I would like to know if the fact that she was conceived through IVF mattered.
27.07.2009
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