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Tags
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
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- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
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Topics
- CF Centre
- I’m a 41-year old man and at young age they incidently discovered that I have cystic fibrosis. Because I’m not often sick not a lot was done about it. At a later age it appeared that my vas deferens is not well developed and recently (probably already several times) I had pancreatitis. On google I discovered a link with these complaints. I consider going to a CF centre but I’m afraid they will medicalize my rather healthy life. I aIso don’t know what the extra value of this could be.
- 20.07.2009
- Cross infection
- My daughter has CF and attends a private school. Another child with CF has applied to our school for the coming year. The children will be in different classrooms, but will come in contact in confined spaces (e.g. school bus, school theatre and feasts, some classrooms for elective subjects, break during bad weather, etc). Is there any risk for one child getting infected by the other, if one is colonized with pseudomonas? Thank you.
- 20.07.2009
- atypical forms of cystic fibrosis
- Dear experts, I would like to know more about atypical forms of cystic fibrosis and tests, especially forms with involvement of the digestive system and the pankreas. Are there forms of Mukoviszidose without an involvement of the lung or at least a very late involvement of the lung within the process of the illness? I read about infections with pseudomonas which do occur very often with this illness; is a long lasting infection with pseudomonas in a toe an indicator for cystic fibrosis? Many thanks in advance.
- 20.07.2009
- no subject - treatment of Ps. aeruginosa
- For how long should be Pseudomonas treated if my daughter has it for the first time?
- 16.07.2009
- Acapella
- Hello, I have a 15 year old daughter with CF and I am interested in Acapella device. What is it? Thanks.
- 16.07.2009
- Salt cave
- Is it good for a CF patient to stay in a salty cave? Is it beneficial for him? Thanks for an answer.
- 16.07.2009
- Common mutations
- Hello, in Slovakia 30 most common CF mutations are tested. My question is, if these 30 are also the most severe ones or if disease severity is not related with frequency. Thank You for an answer.
- 16.07.2009
- Is it possible that Kreon leads to loss of appetite?
- Hello, I want to ask, if Kreon decreses appetite. I have a 5 years old son, who was without any food problems but after starting to take Kreon his appetite started to decrease and after about 3/4 of a year his appetite is minimal and I am scared to force him not to create a food aversion. Thanks, Ivana.
- 16.07.2009
- Paternity
- Hello, I want to ask if DNA test deny paternity and my daughter has CF, is it possible that these tests are not 100% sure and that testing person still can be a father of this child??
- 16.07.2009
- Fertility
- Hello, I want to ask - I am 16 [we assume that the questioner is male, comment from the coordinator] and I have CF and I want to ask...fertilization how should I know
- 16.07.2009
