Topics

Common mutations
Hello, in Slovakia 30 most common CF mutations are tested. My question is, if these 30 are also the most severe ones or if disease severity is not related with frequency. Thank You for an answer.
16.07.2009
Is it possible that Kreon leads to loss of appetite?
Hello, I want to ask, if Kreon decreses appetite. I have a 5 years old son, who was without any food problems but after starting to take Kreon his appetite started to decrease and after about 3/4 of a year his appetite is minimal and I am scared to force him not to create a food aversion. Thanks, Ivana.
16.07.2009
Paternity
Hello, I want to ask if DNA test deny paternity and my daughter has CF, is it possible that these tests are not 100% sure and that testing person still can be a father of this child??
16.07.2009
Fertility
Hello, I want to ask - I am 16 [we assume that the questioner is male, comment from the coordinator] and I have CF and I want to ask...fertilization how should I know
16.07.2009
Sinusitis
I’m a 21 year old girl. My brother has cystic fibrosis. I’m a carrier of this disease and I’m looking up a lot of information about this. CF patients have a problem with sinusitis and nasal polyps. Is this always due to thick secretions? Thank you.
13.07.2009
Cystic Fibrosis and sex ?
Hello, my name is Jokke and I have a question about Cystic Fibrosis and sex. My girlfriend has Cf and we’ve had a couple of times (oral) sex. But since I’m seeing her I also have trouble with mucus in my throat what I spit out. The mucus is rather thick but I can manage to spit it out after swallowing a few times. It is getting annoying and I’m getting worried I might have CF as well. I read it is not contagious but because I only recently started having this problem, it seems suspicious to me. During the oral sex I obviously swallowed some vaginal fluid so I’m wondering if there could be a link. I’m a bit worried. Greetings Jokke and thank you in advance.
13.07.2009
Thick mucus
For school I have an assignment on CF. Could you help me with my manuscript ? It should cover symptoms, signs, treatment, what you feel and when you have the disease. thank you very much
13.07.2009
nebuliser
not sure this went through the first time so... We are in France to visit my mother in law's family. We burned the motor out on my son's Pari Ultra II nebulizer even using an adapter. Does anyone know where we could find an e-flow or other battery operated nebulizer or some that would be compatible with both EU and US voltage (100-230 volts) Any suggestions would be welcomed. thank you in advance for any assistance.
13.07.2009
Survey
Please could you advise me which are the best validated & accepted survey questionnaires designed for adult and adolescent CF patients to: ascertain their knowledge of CF, quality of life satisfaction with the CF services they access.
13.07.2009
alcohol
How is it with alcohol use and cystic fibrosis ?
13.07.2009
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