Topics

Sinusitis
I’m a 21 year old girl. My brother has cystic fibrosis. I’m a carrier of this disease and I’m looking up a lot of information about this. CF patients have a problem with sinusitis and nasal polyps. Is this always due to thick secretions? Thank you.
13.07.2009
Cystic Fibrosis and sex ?
Hello, my name is Jokke and I have a question about Cystic Fibrosis and sex. My girlfriend has Cf and we’ve had a couple of times (oral) sex. But since I’m seeing her I also have trouble with mucus in my throat what I spit out. The mucus is rather thick but I can manage to spit it out after swallowing a few times. It is getting annoying and I’m getting worried I might have CF as well. I read it is not contagious but because I only recently started having this problem, it seems suspicious to me. During the oral sex I obviously swallowed some vaginal fluid so I’m wondering if there could be a link. I’m a bit worried. Greetings Jokke and thank you in advance.
13.07.2009
Thick mucus
For school I have an assignment on CF. Could you help me with my manuscript ? It should cover symptoms, signs, treatment, what you feel and when you have the disease. thank you very much
13.07.2009
nebuliser
not sure this went through the first time so... We are in France to visit my mother in law's family. We burned the motor out on my son's Pari Ultra II nebulizer even using an adapter. Does anyone know where we could find an e-flow or other battery operated nebulizer or some that would be compatible with both EU and US voltage (100-230 volts) Any suggestions would be welcomed. thank you in advance for any assistance.
13.07.2009
Survey
Please could you advise me which are the best validated & accepted survey questionnaires designed for adult and adolescent CF patients to: ascertain their knowledge of CF, quality of life satisfaction with the CF services they access.
13.07.2009
alcohol
How is it with alcohol use and cystic fibrosis ?
13.07.2009
CF research
Are there any tests done in Belgium to cure people with CF ?
13.07.2009
Stools
What is so different in the stools of toddlers with CF. I know that the stool is greasy, but what about the colour? And are there many undigested particles in it ?
13.07.2009
CF
Which food is not recommended for patient with cystic fibrosis? Sincerely, Medical student of Vilnius University
13.07.2009
PTC 124 Trials
Could you possibly let me know about the progress on the PTC 124 drug, if any? Regards Tandey Muller"
09.07.2009
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