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Tags
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- swine influenza reported in the village
- My son, 3 years old, suffers from CF in a mild form. Now the swine influenza has been reported at a school near us (already three cases). My question: Has it any effect to vaccinate my son against the flu resp. has this to be a special vaccine? Many thanks in advance!
- 07.07.2009
- MRSA - handling after successfull eradication
- Hello, I have a question for the experts. I have been tested positively for MRSA 10 weeks ago, whereupon a sanitation with an antibiotic had been done. Now in the last four sputum samples as well as in one nasal swab no MRSA could be detected anymore. In spite of this I have problems with my employer, as one speculates, that the MRSA can admittely not be detected, but is neverhteless in the lungs. In CF a permanent eradication would not be possible due to the statements of the public health department. Are there any clinical studies or experience on this topic? Many thanks.
- 07.07.2009
- Sweat test - ionotophoresis - limiting values
- Dear ladies and gentlemen, our son (10) has had now already the third sweat test at a CF- center. The results varied: 76 mmol/l NaCl, 72 mmol/l NaCl and 59 mmol/l NaCl. I would be interested in the limiting values and the reasons for the variation. We are still waiting on the results of the human genetics. As our son is otherwise free of symptoms, and is pancreas sufficient, we are patient. Thanks in advance!
- 07.07.2009
- The Vest
- It has been recommended to our daughter (15) at the last rehabilitation (Bad Sulza, Germany) the therapeutic system "The Vest". How is the opinion of the experts? Does the insurance cover the costs? Does one have already experience with that?
- 06.07.2009
- Time intervall between Colistin/DNAse
- Dear expert team, my 11-year old son inhales with the e-flow: -in the mornings and in the evenings 5ml NaCl and afterwards Colistin - in the middle of the day DNAse (does not have mucus, that has to be mobilized) Is it possible on holidays to change the order due to lack of time e.g. -in the mornings DNAse, then in the same inhalette NaCl and afterwards Colistin - in the evenings NaCl and Colistin??? Is it possible exeptionally to inhale both Colistin ampules directly after the other? and the DNAse at another timepoint? Which order resp. timeintervals have to be stuck to in any case?? Many thanks for your answer
- 06.07.2009
- a stuffy nose
- I have a boy of about 2 years, diagnosed at 3 months with cystic fibrosis. In his culture he has staphylococcus aureus, from December he has stuffy nose for about 2 months. He had treatment, he does not cough, but especially at night has a stuffy nose and breathe on mouth.I noticed that he breathes a little harder. What can I do for him to breathe on his nose? thank you.
- 06.07.2009
- alimentation
- How can I learn to feed correctly my child diagnosed with CF. He is 1 year and 8 months and still breastfeeding, il would like up to 3 years. He had 10.800kg and in some days he wants to eat just milk.
- 06.07.2009
- Orthodox medicine /natural medicine
- Dear expert team, I have heard that one can combine orthodox medicine very well with natural medicine in CF, e.g. tea, acupuncture, massages, and other. Is that right?
- 02.07.2009
- CF-gene
- I have a half-sister, she has been diagnosed with one CF-gene. As I did not know here up to now, I fear, that my son as nephew resp. half-nephew also carries that gene. Is there a probability for this? My sister and me we have the same father, but not the mother??!! Thank you
- 02.07.2009
- Search for a suitable CF-center
- Dear expert team, I am 29 years old and I am searching for a suitable CF-center for me. My lung function is normal. I have a liver-cirrhosis with oesophageal varices (IV) and a diabetes. Probably you have an idea. Many thanks in advance.
- 02.07.2009
