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- ABPA_Aspergillus
- accompanying diseases
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Topics
- Time intervall between Colistin/DNAse
- Dear expert team, my 11-year old son inhales with the e-flow: -in the mornings and in the evenings 5ml NaCl and afterwards Colistin - in the middle of the day DNAse (does not have mucus, that has to be mobilized) Is it possible on holidays to change the order due to lack of time e.g. -in the mornings DNAse, then in the same inhalette NaCl and afterwards Colistin - in the evenings NaCl and Colistin??? Is it possible exeptionally to inhale both Colistin ampules directly after the other? and the DNAse at another timepoint? Which order resp. timeintervals have to be stuck to in any case?? Many thanks for your answer
- 06.07.2009
- a stuffy nose
- I have a boy of about 2 years, diagnosed at 3 months with cystic fibrosis. In his culture he has staphylococcus aureus, from December he has stuffy nose for about 2 months. He had treatment, he does not cough, but especially at night has a stuffy nose and breathe on mouth.I noticed that he breathes a little harder. What can I do for him to breathe on his nose? thank you.
- 06.07.2009
- alimentation
- How can I learn to feed correctly my child diagnosed with CF. He is 1 year and 8 months and still breastfeeding, il would like up to 3 years. He had 10.800kg and in some days he wants to eat just milk.
- 06.07.2009
- Orthodox medicine /natural medicine
- Dear expert team, I have heard that one can combine orthodox medicine very well with natural medicine in CF, e.g. tea, acupuncture, massages, and other. Is that right?
- 02.07.2009
- CF-gene
- I have a half-sister, she has been diagnosed with one CF-gene. As I did not know here up to now, I fear, that my son as nephew resp. half-nephew also carries that gene. Is there a probability for this? My sister and me we have the same father, but not the mother??!! Thank you
- 02.07.2009
- Search for a suitable CF-center
- Dear expert team, I am 29 years old and I am searching for a suitable CF-center for me. My lung function is normal. I have a liver-cirrhosis with oesophageal varices (IV) and a diabetes. Probably you have an idea. Many thanks in advance.
- 02.07.2009
- Course of borderline-CF
- Dear expert team, for just another time I have a question for you: My daughter, nearly 5, mutations R116X/R1048G did up to now have only slight problems with her CF. This winter she has had infections more often, which had to be treated with altogether 6 antibiotic therapies. At the half-year check it has been said to us, that we have now to start with the physiotherapy in the end and she has to undergo an antibiotic therapy for 2 months. Up to now "only" her lung is involved. Now the question comes to me if I have to fear that sometime her pancreas could also be involved!?! It has however been said to us, that our daughter is a so-called borderline case. Now it seems not to be like that anymore. I am a bit insecured, how to cope with the new situation. Does it mean that her state of health can worsen the same as in all other patients with CF? Many thanks for your answer.
- 30.06.2009
- Reduction of the hearing as a consequence of an antibiotic therapy
- My son is 4 years old and has CF (diagnosed after birth with meconium ileus). I had already the impression from the beginning, that he does not hear properly, which has been denied by the doctors mostly. Now, with increasing age it strikes even more to me again. At an online platform I heard from older CF patients, which do alike and who bring it in connection with their intake of antibiotics. My son has had in the first year some i.v. with diverse antbiotics, afterwards however almost exclusivley inhalation with Tobramycin, for a short period of time he takes in additon Azithromycin. At the latter, hardness of hearing is listed as a rare side-effect, at Tobramycin, as far as I do remember, at least effects on the ear canal (tinnitus, impairment of the balance). Are there any studies or number of cases, which do confirm an accumulation of problems with the hearing in CF patients, caused by antibiotics? If yes, are there any experiences to minimize these via changing of therapy respectively to avoid these (composition, dosage, etc.)? Is the damage irreversible or does the condition normalize itself after termination of the antibiotic therapy? In other words: Can it be that the reduction of the hearing has been caused by the i.v. courses in the first year of life and is permanent? Many thanks for your help
- 30.06.2009
- she does not have any chance
- Our little girl is in hospital and and can not breathe without an oxygen mask and can not be treated . Every night she has crisis and she does not have air. Her mother is very upset. What can be done in these circumstances to be easier daughter? May be something to do? treatment no longer work. How can we help ?
- 25.06.2009
- Rhinoclear
- Hello, I have a one year old daughter. I want to ask if it is suitable to purchase nose shower Rhinoclear now or for the future (http://www.slanedeti.sk/phprs/view.php?cisloclanku=2007020002). Thanks
- 25.06.2009
