ecorn-cf: App. question list

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Permanent antibiotic therapy: Dear expert team, our daughter is 16 months old an has CF. Until now we had only problems with the intestine and not with the lung. No colonization with germs, no cough or higher susceptibility for infections. In our town there are two CF outpatient clinics. We are cared for in one of them, a permanent antibiotic therapy has never been mentioned there. We wanted to look at the second outpatient clinic and did refer our daughter there. They said there, that they would recommend a permanent antibiotic therapy to all patients. What do you think of a permanent antibiotic therapy? Best regards,; 26.05.2009

carrier: Is it true that if you are a carrier of the CF-mutation, you are more prone to get certain infections and you need to follow a treatment program?; 18.05.2009

Grapefruit and antibiotics: I read that the action of some antibiotics changes when you take them together with grapefruit (juice). Is this correct and is this the case with ciprofloxacine? Is the action stronger then?; 18.05.2009

Desperate: My son has all signs of CF. At the hospital, they refuse to test for CF because he is growing well. His growth curve looks like a wild water sea. The first years of his life, he didn’t grow well at all. He weighted 10 kilos before he was one year old but at the age of 2, he still only weighed 10 kilos. In march last year, his tonsils were removed and since then he eats better. Now he is 3,5 years old and weighs 16 kilos. But he also loses weight quickly. Wich hospital should I go to with him? I’m really desperate. Thank you; 18.05.2009

Tube water: My daughter with Cf (6 yrs old) drinks tap water in the Kindergarten as do all other children. Our physiotherapist has cautioned us not to let her drink tap water, since tap water can be contaminated with bacteria. However, the water quality in the Kindergarten is high according to drinking water standards, and we know that she never should take the first water after opening the tap and we also let the water run for some time before taking water to give her to drink. These precautions are also followed by the Kindergarten. However, the general verdict not to drink controlled drinking water was new to us. Is our physiotherapist right?; 18.05.2009

Lung transplantation: I am aware that my son 21 years who has CF will need lung transplant . Where and how could I record my son for transplant. We are from Moldavian Republic .; 18.05.2009

Cystic fibrosis: Many children with CF have vitamin D insufficiency. Many of them have this problem even if they use vitamin D supplements. What is the reason of it? Regards, Justina.; 12.05.2009

Information on health professionals involved in CF: I am researching CF and am wondering if I were a patient which types of health professionals would I come into contact with; 12.05.2009

Lung transplantation: When should be done a lung transplantion in CF? What happens when a patient refuses or fails to find a donor for 36 years female?; 12.05.2009

kreon for children: Hello, I am a psychologist and I have a client with CF and currently we are tackling the problem of the application of pills. Boy is 3 years old and refuses pills, although when they are given with something else. He takes some Kreon’s (I can´t make head or tail of it), I only know that they are big and bad to swallow, he is still so little. Can you recommend me some way of application of this drug for three years old boy, or some other acceptable drugs? His doctor said, there isn’t any other medication, I mean different form. Thanks for answer.; 12.05.2009