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- accompanying diseases
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Topics
- Sweat chlorides
- Hello, I would like to ask about the factors which could influence the chloride measurements in CF. My child had the chloride test twice because we had to go to the hospital twice for pneumonia, and the results were 37 and the second was 47. He has no symptoms; even the second pneumonia was due to the fact that the first one was not treated properly. He is two months old, is very lively, eats well, and does not taste salty. We will go to Bratislava for a repeat of the tests. Could he have CF despite all this? What are the factors that influence this test? Thank you
- 29.04.2009
- azithromycin
- Can Azithromycin be used for CF children treatment? How does it work?
- 28.04.2009
- Chronification of PsA
- Dear Expert Team, first of all, many thanks for your answer to our previous question, on how to deal with PsA antibodies. Could you please briefly explain to me the process leading to chronic colonization with Pseudomonas Aeruginosa? It somehow seems like there are differing definitions… What parameters are necessary? And what is the approximate time span during which PsA becomes chronic if one has gotten maximum therapy early on? How does one explain the fact that there is not a single patient under 18 years of age with chronic PsA in Denmark, whereas in Germany many children already have it? Thank you for your answer.
- 28.04.2009
- nutrition and sports
- My 11 year old son with CF is involved in a lot of sports: intensive hockey training (1,5 to 2 hours, 3 times a week), hockey competition of 1,5 hours and 2 times 1 hour tennis training a week. His trainer mentioned recently that he was “empty” at the end of the competition, there were no signs of breath shortage, but he had no energy left. His lung function tests are positive until now and he uses pancreatic enzymes (Creon), vitames en antibiotics (cotrimoxazol); no other medication. My question is: is extra nutrition needed, such as supplements or salt (e.g. chips), during breaks ? Is his limited fat mass a symptom of his ‘emptiness’?
- 28.04.2009
- CF Diagnosis
- Hello, My son will be 6 months. He is thriving (7,75 kg, cca 70 cm) but has had runny stool (no diets make it better), with phlegm, sometimes oily, like greasy mud. He suffers from stomach pains during nursing and feeding (more cramps earlier, now on Lefax so the problems have subsided a bit). He could not be fully nursed and was additionaly fed by Nutrilon, nowadays mostly. He had some blood in his stool once. He seems to have a salty sweat but I have no way to compare it. His pediatrician does not see anything unusual on his stomach problems, she thinks that it is caused by the formula, but I worry. Sometimes my son coughs a bit, but nothing significant. He went throught infection connected with cough once. No CF in the family, no tests done. I suffer from juvenile chronic arthritis (without any significant problems and currently on no medication) and my husband has a lower thyroid gland function and on his side of the family there are problems connected to thyroid gland. Should I consider the CF test? How is it done? Is hospitalisation necessary? Thank you for your answer.
- 27.04.2009
- Salty body
- I am 58 years old. About two years I have awfully salty body. Even in my eyebrows, I have salt crystals.
- 27.04.2009
- Diagnosis
- My daughter has CF Delta F508. Because I have reduced fertility we went to a infertility clinic. Eventually after 10 trials 1 sperm cell was brought into an egg cell and my daughter was born from this. I myself have many physical problems such as nasal polyps, lots of problems with my joints and I had several examinations because I have abdominal complaints. As a child I often fainted and I had an EEG done on several occasions. Also my blood sugars vary enormously. Is there any chance that I may have CF in a milder form, I was really never tested for this. Is it adviced that I should be tested? Greetings J.
- 27.04.2009
- CF at an older age
- Can you get CF at an older age ? At the age of 50 years for example ?
- 27.04.2009
- good hand – cough hygiene
- What is a good hand – cough hygiene ???
- 27.04.2009
- secretions
- I am 40 years old and since some time I have many secretions in the morning. Sometimes I vomit and my intestines seem to be very sensitive. Could this be Cystic Fibrosis ?
- 27.04.2009
