Topics

Protection from light-toxic skin reaction with Ciprofloxacin
Which sunscreens provide protection from light-toxic reactions when taking Ciprofloxacin, so that one can still go skiing or spend time outdoors in the Spring and Summer?
27.04.2009
CF - prenatal diagnostics
Is it possible to diagnose CF in an embryo or by prenatal examinations?
23.04.2009
Steam bath and CF
Should a CF patient who also has ABPA take a steam bath?
23.04.2009
Ionisors
Hello, I would like to know if ionisors are good or bad for cystic fibrosis patients? Thank you in advance. H.
23.04.2009
Sudden shortness of breath
I have cystic fibrosis and have difficulties in adapting from cold to warm and from warm to cold temperatures. When I leave or enter a building I get really short of breath and start coughing in particular if I need to walk a bit. Especially during the winter (with temperature changes of 20 degrees or more ) I have a lot of problems. What can I do? I am really bothered by this nearly daily.
23.04.2009
F508del/F508del
Thank you for your reply. Here is more detailed information about diagnosis of my son. In my first question I had no documentation at hand. My son was diagnosed with CF, F508del homozygote. I would like to ask what that means. Thank you very much.
23.04.2009
Mortality in CF
Hello, I’ve already written once. I am a student of a bachellor degree in nursing. I am writing a thesis on Quality of life of adolescents and adults with CF. In spite of the sad nature of this question, I need to have a complete information on this topic. I need to find out what is the latest percentage of mortality of CF patients. I tried searching for it in ÚZIS, but the latest data is from 2001. I would like to ask you for some more up to date information. Thank you for help and have a nice day. Anna M.
23.04.2009
chlorides in sweat
Hello, My 19-month-old daugher suffered from pneumonia three months ago, treated by Clarithromycin, barking cough prevails, greenish nasal discharge, no fever. She was sent to the hospital for sweat test with borderline results 50 mmol/l. Blood test results show mild leucosytosis, throat swab test results - ++streptococus beta-hemolyticus sensitive to PNC. Genetic tests will follow to confirm or exclude genetic mutation. I am deeply concerned that my daughter will be diagnosed with CF. Could you please let me know if the above stated results can possibly say that my daughter does not suffer from CF? Or, is it more or less clear? Thank you very much for your early reply.
23.04.2009
e-flow
Hello, I would like to ask the users about their experience with this inhalator. I am considering to purchase this inhalator but was unable to find any information on the internet except for technical data. Is the quality of inhalation at least comparable to the inhalation with Pari Master? How often do you have to replace the membrane? What is the availability and price of the new membranes? My doctor informed me that apparently 1/3 of inhalation solution remains unused in the inhalator. Is that the truth? Thank you in advance for your information. Roman Seda, Zlin
23.04.2009
Phlegm in stool
Hello, I have CF, take pancreatic enzymes (Kreon 25 000) and have phlegm in stool. Is it normal in CF? Thank you for your reply.
23.04.2009
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