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Topics
- sweat test
- My son was tested for chloride in sweat twice at different places. The values are borderline: 38,86(Kyjov), 34,46(Brno). Should we be concerned that our son suffers from CF?
- 23.04.2009
- CF Centers in Spain
- My daughter with CF is now 19 and she wants to go to Spain for a year, at best to Valencia, which is not a condition. Due to necessary regular check ups, sputum testing and so on we are searching for some CF Centers in Spain, Valencia. Could you please provide us with some contact? Eventualy, what is the situation regarding health care reimbursement in EU countries? Thank you. V. Janda
- 23.04.2009
- CF Diagnosis
- Hello, my five year old daughter underwent sweat test regarding permanent mucosity and the result was first 31, second 30. Does it mean that it is negative? Or should I ask for genetic testing. Thank You for an answer.
- 23.04.2009
- Examination for Delta F508 mutation of cystic fibrosis
- Is it necessary during the examination for both the man and the woman to be present, or can it be carried out seperately?
- 08.04.2009
- acute sinusitis
- Is sulfperazon a treatment for acute sinusitis?
- 07.04.2009
- CF
- I read that CF will mainly occur in white people. Can parents of Moroccan descent have a child with CF?
- 07.04.2009
- VX 809 -gene therapy
- My son is 6 years old and he has a cystic fibrosis - genotype Delta F 508 in both allels. When we can to expect the gene therapy of product VX 809 in Europe as part of necessary medical therapy?
- 07.04.2009
- Carriers CF
- I have CF and my daughters are carriers. Now I have read that in America injections are being given to carriers so that they can’t become sick and they can’t give the disease to other people. Now this seems a major breakthrough and would certainly prevent lots of CF. It seems however unlikely. How is that?
- 07.04.2009
- General pratitioner tests
- I am a general practitioner treating a CF patient who is in his early thirties. Which tests/exams should I do or arrange for, and in what intervals?
- 06.04.2009
- Spasm of the breathing muscles as a reason for dyspnea?
- Hello, I am a general practitioner and I am treating a 20 year-old CF patient, who have been clinically quite inconspicious up to now. Additionally he is under that care of a CF center and is regularly provided with antibiotics in case of exacerbations, under monitoring of the CRP, there. Today he came into my office, with a severe dys- and tachypnea and mentioned as a reason that "the breathing muscles and the muscles of the thorax would cramp painfully" which would be the reason that hinders him from breathing freely. After a pulmonary infection has been excluded by the colleagues, I ask myself if this could be a hyperventilation tetany that affects the breathing muscles and worsens the dyspnea in an attack at that. Does an involvement of the muscles exist in CF? Many thanks for your thoughts.
- 06.04.2009








