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- ABPA_Aspergillus
- accompanying diseases
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Topics
- Not enough weight gain - emptying of the stomach
- Dear expert team, my son (4 years 11 months, CF, Delta F508 homozygous) does not gain weight properly since birth (2.500g, 4 weeks early). At the moment he weighs 15 kg at a height of 100cm. 1) Emptying of the stomach: It is striking (he vomits occasionally due to strong cough) that even after 4 hours he vomits nearly complete meals (which are weighed by us) including enzymes. Is a problem in empyting the stomach frequent in CF? What could be the causes and how could they be corrected? At the age of 6 months there has been an endoscopy of the stomach once (without a pathological finding), as well as a pH-monitoring (borderline, omeprazole did not improve the situation). 2) lacking weight gain: due to an eating disorder, he nearly only eats baby puree from the bottle, that means both food (incl. calsahke) and enzyme dosage are indentical. It is now striking that the stool is very different: from obstipation (up to once a week) to diarrhea/fatty stools (even with maximal enzyme dosage) you find everything. I have the suspicion that the enzymes do not work properly, as they arrive at the wrong moment in the bowel. What can you do here? Or are there any other possible reasons? Blood-sugar tests show an impaired glucose tolerance (up to 180mg/dl), an oral glucose tolerance test is not practicable due to the eating disorder. Many thanks!
- 09.03.2009
- Children
- Dear expert team, I am male and 29 years old. At the moment, I concern myself about the thought of a child. Could you tell me how the chances are and if it is possible for a male to have children, as they say that men with CF are in general sterile. How is the procedure passing with in-vitro fertilization? Do you have possibly some more information for me? Many thanks and best regards
- 09.03.2009
- Salin Plus
- Hello, did you ever hear anything about SALIN plus? Are there any experience reports about that? Here is the link: http://www.salinplus.de A friend has drawn my attention to it and I would like to know if something like that makes sense or is nonsense. To me it sounds as if that would be a good supplemetary measure. I would be pleased to get a feedback.
- 09.03.2009
- Sports and CF
- Which sports are not uniformly good for patients with cystic fibrosis?
- 09.03.2009
- CF with two nonsense mutations
- Hello, our son (5 weeks old) was born with meconium ileus and suffers from exocrine pancreatic insufficiency, which is being treated with pancreatin. By now, it is clear that he has CF. The genetic test showed a compound heterozygosity with nonsense mutation in exons 6 and 11 (heterozygous nonsense mutation in exon 6b (p.Q250X, apparently a very rare mutation) and in exon 11 (G542X)). Our questions: Are there any studies about the course of the disease in CF patients like our son, with two stop mutations? Can we hope for the introduction of PTC124, with the result that our son will not suffer from any further impairment especially of the lungs after taking it (provided that, with the currently known therapies, his problems with the pancreas and lungs will remain)? Many thanks for your answer, and best wishes!
- 02.03.2009
- MRSA and the environment
- Dear expert team, in the family of a friend, MRSA was detected: 2 CF children, father also MRSA-positiv, mother free of MRSA. What does this mean for the contact to the environment, e.g., contact with families with healthy babies, ill friends (no CF) or with friends suffering from CF, and contacts during work? Thanks for the info.
- 26.02.2009
- Padma Basic, Neoglandyna Omega 6
- What do you think of giving to a CF patient such preparations like Padma Basic, Neoglandyna Omega 6? How could they influence the health status of this patient?
- 26.02.2009
- Wilson disease
- Where I can do genetic analysis and how much is it?
- 24.02.2009
- Inhaled antibiotics available in Germany
- My daughter will be studying in Germany for 6 months this spring/summer and is interested in what inhaled antibiotics are available and approved for use in CF there. Could someone tell us?
- 24.02.2009
- Cystic Fibrosis
- What is cystic fibrosis?
- 24.02.2009
