Topics

CF????
Hello, I have a question. CF was detected in our family. I know I could be a carrier and I want to have that tested. My GP is aware of the problem. I asked him if it is possible that I could still get CF. I am 28 years old now and I have never had a complaint that is typical for CF. Now he says I can’t get it because I’ve never had any symptoms. Is that correct?
16.02.2009
Chance of having CF
If one person has a standard risk of 1 in 32 to have CF and his partner is a carrier, how much chance is there that these two people will have a child with CF?
16.02.2009
Cholera
Is it true that a CF person is more resistant to cholera and in earlier days plague?
16.02.2009
Gene
Do people with CF have CF-gene, or does everybody carry a CF-gene and do people with cystic fibrosis have a mutation in the CF-gene?
16.02.2009
Medicine
My child (6 years old) has CF. What is the best medicine hor him to get the mucus thinner?
16.02.2009
Desire to have children
Hello, My boyfriend and I (CF, 25 years old, 179cm, 67kg, FEV1: 90%) have been trying to get pregnant for two years and are now under treatment at a center for patients who wish to have children. However, the staff there has not been able to provide any (satisfactory) answers to some CF-specific questions: How likely is it that the fallopian tubes, which were previously checked for permeability, get blocked again and in which space of time could this happen? Is it possible that the egg’s or sperms’ passage gets blocked even though the tubes are clear? Does a Sims-Huhner test (which doctors have refused so far) make sense even before insemination? Is there a similar test that can be carried out to check the tissue of the uterus and the fallopian tubes that is relevant for an insemination? Would the health insurance company cover the cost for an SH test? If not, how much would it cost? Are there drugs that reduce the likelihood of getting pregnant? I am currently taking acetylsalicylic acid (expectorant), dornase alfa, sodium chloride (inhalation), flucloxacillin, and a vitamin compound (ADEK). Additionally, during times in which I can exclude a pregnancy, I occasionally inhale Tobramycin for two weeks. [geographically specific inquiries were omitted in the translation] Kind regards, Sarah
16.02.2009
high resolution CT
My boy is 8 months old and diagnosed with cystic fibrosis. I would like to know what medical centre has computed tomographe with high resolution.
16.02.2009
Cystic fibrosis
Do you know haw many people suffer from CF on a worldwide scale. Thank you for your help
05.02.2009
Cystic Fibrosis
Does anyone know if the salt air purifer by salin works well for a cf patient?
03.02.2009
Salty kiss
My son just had a sweat test done to exclude CF. We don’t have the results yet. If I kiss my son there is no salty taste so I wonder how this is. My son doesn’t really sweat all that much. Does the sweat of a child with CF always taste salty when you kiss him or not?
03.02.2009
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