Topics

colistin
Hello! What can replace Colistin in aerosols in patients with CF? Colistin can not be found in pharmacies , they say is no longer manufactured, and if there is an equivalent for it and what are the doses for preparing aerosols.
24.02.2009
CF and massive sleep disorder
Dear Expert Team, I was accidentally diagnosed with CF only at the age of 29 and have been suffering from massive sleep disorder for several years. I go to bed at 10 p.m. and get up again at 5:30 a.m.. During the night, I get up four times and have to eat and drink something, and in the morning I am very exhausted. Could this be a sign of a lack of oxygen during the night, or rather too much strain from taking care of my daughter (six years, CF)? Many thanks, leomax1994
24.02.2009
CF and exhaustion on distances greater than 250 meters
Dear Expert Team, My daughter is 6 years and 11 months old and has CF. She suffers from exhaustion on longer distances and I have to cart her in the buggy or carry her. A treadmill test that was not carried out at the CF clinic confirmed the exhaustion, but lung function was ok. The CF doctor thinks my daughter is too lazy to walk, but why does she vomit and cry when I force her to walk? I want to help my daughter, but since I suffer from CF myself and am not allowed to lift heavy weights, it is very difficult for me to manage that every day and not know what is the matter with her. My daughter says her knees keep buckling under her. leomax75 Question from 7.1.09: Dear Professor Wagner, Thank you very much indeed for the quick answer. For four years now, my daughter (6 years 11 months, CF) has been doing intensive physical therapy twice a week for one hour, combined with muscle-building training (long distances by foot, treadmill, etc.). However, she still complains about knee pain. It has been 11 months now and there has not been any improvement despite the walking. My daughter’s belly is bulged out extremely, and she has skew and flat foot. Due to this, an expert immediately recommended a therapeutic buggy for the motoric function, but I am still fighting with the health insurance company about that because the doctor refused to write a statement of support. The X-ray of the pelvis was normal. My last question to you, which is very important to me, is: what kind of other tests could I have performed in order to make sure there is no muscular disease or diabetes at hand? At school as well as in kindergarten, the exhaustion shows as well. If I make her walk, she vomits heavily during the night. Kind regards, and thank you very much for your effort, leomax75
24.02.2009
CF and distances greater than 250 meters (answer)
Please see the Q/A CF and exhaustion on distances greater than 250 meters
24.02.2009
Caucasians
Does CF occur more commonly in Caucasians because they live in remote areas and just meet each other for social activities and procreation? And is this the reason for a higher chance of CF?
17.02.2009
Daughter
Dear madam, sir, We have a 2,5 year old daughter. Since a more than a year she is coughing at night. She got different puffs with asthma medication but they didn’t really help much. Her tonsils were removed and that didn’t help either. She seems to get a cold quite often. And during a cold she has a couple of days of fever. Apart from that, she seems really healthy and thrives well. Could this night time cough and this having ‘colds’ all the time be due to CF?
16.02.2009
CF????
Hello, I have a question. CF was detected in our family. I know I could be a carrier and I want to have that tested. My GP is aware of the problem. I asked him if it is possible that I could still get CF. I am 28 years old now and I have never had a complaint that is typical for CF. Now he says I can’t get it because I’ve never had any symptoms. Is that correct?
16.02.2009
Chance of having CF
If one person has a standard risk of 1 in 32 to have CF and his partner is a carrier, how much chance is there that these two people will have a child with CF?
16.02.2009
Cholera
Is it true that a CF person is more resistant to cholera and in earlier days plague?
16.02.2009
Gene
Do people with CF have CF-gene, or does everybody carry a CF-gene and do people with cystic fibrosis have a mutation in the CF-gene?
16.02.2009
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