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Topics
- Life of an average 16 year old adolescent with CF
- What does an average day look like in the life of an average 16 year old adolescent with cystic fibrosis?
- 03.02.2009
- CF and streptococcus
- What kind of risk does a patient with CF have, when he has streptococcus.
- 03.02.2009
- Health
- Hello, I have CF and am 31 years old. I am doing well, and most of the time I feel fit and healthy. My FEV1 ranges from 72 to 84 %, depending on my condition. I work a lot, though, between 10 and 14 hours a day, and don’t take a lot of time off. Would you consider this a health risk? Best wishes.
- 03.02.2009
- Sweat test with borderline values
- Hello, my 4-year-old daughter took a sweat test today, since she frequently has a cough. Up until the day before the test, she was treated with antibiotics (light case of pneumonia). The result was a value of 46, which, however, has not been confirmed by the lab yet. The doctor said my daughter still had some mucus still but that the lung was ok again. I was told to call back later, and if the lab value differs from the one above, she could give the all-clear. What do you think about this? Do we have to worry?
- 03.02.2009
- genetics
- (to dr Sobczyńska) Are the mutations F508 del and R334W, if present together, severe form of CF and what is the prognosis? Should any special treatment of the CF patient be introduced?
- 03.02.2009
- genetical tests
- Genetical tests were done in the whole family in 1992 without assessment of mutations. One mutation was detected in a sick child (F508 and R553X). Is it possible to assess this mutation in the second daughter in connection with the fact, that she was diagnosed as being a carrier? Regarding the second daughter's family planning: is it possible to assess mutations in her partner? What should be done in such situation?
- 03.02.2009
- genetical testing
- My son 20 years ago underwent genetical testing in Poznań. It turned out, that he has F508 del mutation. On this occasion his mother, father and sister were also tested. Does it make any sense to perform another genetical testing in my son? Will the results of the tests influence the possible ways of treatment?
- 02.02.2009
- another genetic testing
- (to dr A. Sobczyńska) The child was examined and has F508 del mutation (examination was done 11 years ago). Should I examined the child again toward another mutation? The second child is not sick (sweat test). Should I perform genetic tests in the second child toward a CF carrier state?
- 02.02.2009
- transplant
- How could I schedule a pulmonary transplant in a clinic in UK for my teenage boy with cystic fibrosis?
- 02.02.2009
- Influence of medication on memory
- I read something about the influence of medication on the memory of people with CF. Can you supply some info about this? What medication does what to my memory? Or is it something that most people with CF suffer from anyhow?
- 02.02.2009
