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Tags
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
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- covid-19
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- hepatobiliary disease
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- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
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Topics
- CF difficulties
- My child is coughing up phlegm, and swabs made by the local pediatrician show staphyloccus epidermidis in the nose. The child has had pseudomonas in the past and is now coughing. Two weeks ago she had Sumamed prescribed when she had a cold. We're afraid that the cough will turn into pneumonia. Please advise us on what to do; we have a checkup in a week at our CF center. We have 2 such patients and are unclear as to how to proceed. What is serious and what isn't? Is it possible that a 2-year-old child would cough without anything showing up in the swabs? Thank you
- 22.01.2009
- Consultation
- Hello. I'm 44 years old. Since June, 2007 I have had long-term swelling throughout my body, concentrated in the face and evenly in the area from the knees to the groin. A comprehensive examination was unable to come up with a diagnosis. The biclonal IgG kappa gammopathy was set at 2.5+0.8g/l, and repeatedly low albumin levels at 32.4, with decreased kidney filtration functions and hypoproteinemia. Since childhood I've had repeated infections in the nose and throat, vocal cords and an emetic cough. My mother had an operation for pancreatic cancer. Should I undergo examination to rule out CF, and if so, how? Thank you for devoting time to my question. Best regards, Ivana R.
- 22.01.2009
- Travelling to the sea
- Is it recommended for a child (4 years old with CF) to travel to the sea in an airplane? Thank you.
- 22.01.2009
- CF centres
- Hello, I'm a mother of a 6-month-old son who has had CF confirmed. Because we are planning to go on holidays this summer, I wanted to know if there are specialized CF centers in Croatia, Austria and Italy. Can we contact them in the event of a worsening of his situation? I have paid for health insurance, but isn't there a card for a patient with all of their records of illness and treatments, so that other doctors can more easily orient themselves? Thank you,
- 22.01.2009
- Help
- Hello. I would like to help people with this disease. My life changed when I found out about this disease through one singer who suffered from it. After his death, an organization was founded in his name to help those in need. In this way I would like to turn to you to ask about how I can help people suffering from this disease and what must be done?
- 22.01.2009
- pharmacological agents in European Union
- Are there any other pharmacological agents used in European Union countries than in Poland? Any other drugs?
- 20.01.2009
- F508del mutation
- Should the genetic tests, which were done in 2005 and confirmed F508del mutation in both allels, be repeated for more details?
- 20.01.2009
- CF carrier state
- In case of confirmed CF carrier state in CF child's siblings (F508 del) should any additional tests be performed? Ii it neccessary, if no symptoms are present?
- 20.01.2009
- CFTR-related disorders
- In case of suspicion of CFTR-related disorders, where can one search for information?
- 20.01.2009
- CF carrier state
- If among family members of a CF patient single symptoms characteristic for CF are present, can one assume, that they are carriers? In other words - should the genetical testing be suggested to these family members, even distant relatives?
- 20.01.2009
