Topics

I-neb
Which drugs can one inhale with the I-neb by Respironics at this point? I would particularly be interested in whether there are any desoxyribonucleasis (Dornase alfa) and fenoterol/ipratropium bromide chips. Greetings, S. Ekindy.
05.01.2009
Oxygen saturation at night
Is it necessary to wear an oxygen mask with an average value of 91 (without mask)?
05.01.2009
Registration
Hello, my child has CF and I work in the medical field as a therapist. What is the difference between registering as a) a family member or patient, or b) a care team member? Are there different kinds of information available for each, and should I then also register twice (with two user names and passwords)? Many thanks.
05.01.2009
How to get consultation for CF child
My child has CF. I would like him to be consulted by Dr S. Dumcius. What hospital is he working?
05.01.2009
Sweat test
Hello, I want to ask You what is normal level of sweat test, our daughter had 28 and they said that it is negative but it would be good to repeate it?
05.01.2009
Pseudomonas
Dear Expert team! If a drop of water contains Pseudomonas aeruginosa, is it possible that the bacterium survives if the drop dries out?
05.01.2009
RSV-vaccination
Our daughter, (CF, 1,5 years) was immunized last year against the RS-virus. Since this winter we expect the health insurance to decline an immunisation (for financial reasons) we would like to know from you how important you think this vaccination is (so far she does very well), because we think of accepting the costs ourselves.
05.01.2009
bronchiectasis
Our son (23) has problems with viscous mucus, pulmonary infections and nasal polyps (3x nasal surgery) since the age of two weeks. There are bronchiectasis in the upper lobe and he is colonised with Pseudomonas aeruginosa. There is no proof of CF. He recently was admitted to a regional hospital and had a lobectomy of the left upper lobe. My question: in which hospital in Holland is the most expertise in the field of bronchiectasis, which Professor/Doctor is specialised in this field ?
05.01.2009
Dogs
Is it necesarry for a CF patient to take extra measurements and for instance not have dogs ?
05.01.2009
Cystic Fibrosis
My daughter has an elevated sweat test value. 60-80 would be normal. She is at 75. The test was done due to an anal prolapse, and she is also small in stature. The test will be repeated in February. I am all run down. The doctor says there are 1200 sub-groups and the disease will not necessarily appear. And who could it come from, since it is hereditary.
05.01.2009
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