Topics

RSV-vaccination
Our daughter, (CF, 1,5 years) was immunized last year against the RS-virus. Since this winter we expect the health insurance to decline an immunisation (for financial reasons) we would like to know from you how important you think this vaccination is (so far she does very well), because we think of accepting the costs ourselves.
05.01.2009
bronchiectasis
Our son (23) has problems with viscous mucus, pulmonary infections and nasal polyps (3x nasal surgery) since the age of two weeks. There are bronchiectasis in the upper lobe and he is colonised with Pseudomonas aeruginosa. There is no proof of CF. He recently was admitted to a regional hospital and had a lobectomy of the left upper lobe. My question: in which hospital in Holland is the most expertise in the field of bronchiectasis, which Professor/Doctor is specialised in this field ?
05.01.2009
Dogs
Is it necesarry for a CF patient to take extra measurements and for instance not have dogs ?
05.01.2009
Cystic Fibrosis
My daughter has an elevated sweat test value. 60-80 would be normal. She is at 75. The test was done due to an anal prolapse, and she is also small in stature. The test will be repeated in February. I am all run down. The doctor says there are 1200 sub-groups and the disease will not necessarily appear. And who could it come from, since it is hereditary.
05.01.2009
Baby does not gain weight (follow-up to an earlier question)
Dear expert team, I already asked a question about the issue „baby does not gain weight (being exclusively breastfed) on July 31, 2008. Thank you very much for your answer. Unfortunately since then the situation did not improve at all. On the contrary, he is growing thinner and thinner. In the meantime our now six months old son was in hospital again. He had bloody mucilaginous stools. The reason for this could not be found with 100 % certainty even after a colonoscopy. It is supposed that this was due to a CMV-Virus infection. Anyway, after some time the stools improved on their own. The former upper lobe atelectasis nearly disappeared. Only a small number of shades are still to be seen in the x-ray. He still coughs relatively often. Because of heavy coughing fits he vomits, especially after meals. That occurs several times a week. In the majority of cases he then does not continue to eat (drink), thus he misses a complete meal. Additionally his gall function is never correct although Ursofalk was increased up to 2.5 ml. Unfortunately he did not gain nearly any weight yet. Now, at the age of 6 months, he only weighs 5700 g. That is although he currently is drinking a bit better. We were advised to start supplementary food at the age of five months. This we did. We use the normal glasses of baby food you can buy and mix it with a bit of oil. Sometimes the purees are eaten in small quantities, sometimes absolutely refused. Apart from that he is still being breastfed, with each breastfed meal ( about 60 to 100 g) he now gets 3 ML Kreon for children. The breast milk was never examined (which you advised). Nor was the oesophagus examined – however, a ultrasonic examination of the abdomen was performed. In the CF-clinic we were told that the lacking weight gain is due to the many earlier problems he had. We think it there is a different reason, because currently he is sort of healthy and in a good temper. He is eating a bit more food, but all that does not seem to have any effect whatever. Sadly we feel that nobody can help us with the issue of lacking weight gain. With kind regards Roman K.
04.01.2009
Problem with urine
For several days Ola's urine has a very unpleasant odour, I can't see the colour, because she urinates very often with small amounts of urine. Tomorrow I will go to do urinalysis. The glucose level measured with glucometer before night rest is 97. She drinks a lot. Should I worry? Greetings, Ola's mother from Opole
04.01.2009
Pseudomonas fluorescens
Is intravenous antibiotic therapy necessary when Pseudomonas fluorescens is found in sputum of a CF patient? Is this type of Pseudomonas dangerous? Is the patient considered as colonised by pseudomonas? Thank you for your reply.
04.01.2009
Contagion
Dear Expert Team, I have an urgent question: my new girlfriend carries the Epstein virus and had a borreliosis infection from a tick one year ago. Now my question: is that dangerous for me as a CF patient? Can I contract the virus, or is it safe? I would appreciate a quick answer! Best wishes
04.01.2009
Contagion Part 2
Please see for the full question and answer "Contagion" in the Archive! Hello Dr. Smaczny, Thank you very much for your quick answer. But what about the Epstein virus, could this be dangerous for me? Thanks a lot, With kindest regards,
04.01.2009
inhalation
Hi, I use ACC for inhalation, but I have heartburn and stomach difficulties, so I wish to ask you for advice. What is the difference between dornase and acetylcystein? Do you think that I can start dornase? Thank you.
04.01.2009
<<  < 311 | 312 | 313 | 314 | 315 | 316 | 317 | 318 | 319 | 320 | 321 | 322 | 323  ...  341 >  >>