Topics

Ribomunyl gra
Hi, does a justification exist for treatment of an infant (20months) by ribomunyl in order to support his immunity? Thank you for your reply.
04.01.2009
Stenotrophomonas
Dear Expert Team, My problem germs are mainly Staphylococcus, Haemophilus, sporadically Aspergillus, and currently also Stenotrophomonas. Over the past three weeks I have been feeling very sick and have had a lot of sputum and dry cough particularly at night, which has resulted in exhaustion and a high need for sleep. My doctors are now focusing on the Stenotrophomonas because they assume it to be the reason for my current ailment. However, since the Stenotrophomonas is always subliminally present everywhere, could it not also be the other bacteria? What I mean is that after the last antibiogram, only two antibiotics reacted positive to Stenotrophomonas. I tried Ciprofloxacine, which did not work, and Cefuroxime has not had a significant effect after the third day, either. Whenever Stenotrophomonas has not been detected, I have been prescribed Doxycycline and it has helped me very well. Also, I was sometimes able to convince my doctors to prescribe Doxycycline when it was presumed resistant to the existing germs [translator’s comment: patient probably meant that the germs were presumed resistant to the antibiotic]. If you are dealing with patients who are already in their mid-40s, should you as a physician not trust the patients’ sense of what helps and what does not help, and at least try it? After all, an antibiogram only provides support with the choice of antibiotic but does not ensure success in its application. As far as I know, Stenotrophomonas has not been researched enough to know what damage it does or does not cause. I was even advised to try an i.v. therapy, but with that, too, it is debatable whether it makes sense with this particular germ. I am almost ready to think about whether I will take this step, but I am also afraid of hospital germs. Many thanks.
22.12.2008
Statistics
Good afternoon, I would like ask you for an advice how I may acquire some statistical informations about cystic fibrosis. I study at Slovak Health University and I need this data for my health statistics semestral work. Thank you.
22.12.2008
Disability
Do disability is given after cystic fibrosis for child of 5 years old is diagnosed?
22.12.2008
Pseudomonas: Is there any danger in the lawn?
Our son, 8, wants to play football/soccer in a club. He is active in sports, a member of a gymnastics club and karate. Our question: Is it dangerous to play outside when it is raining and the lawn is wet or when the lawn ist still wet because it rained the day before and the drops fall on him? Thank you very much for answering this question.
22.12.2008
Pseudomonas
Hi, I am 25 years old and have very severe asthma which is but difficult to be hold at bay with all drugs available (Symbicort, Singulair, Decortin 7,5mg, Sultanol forte for Pari boy...) I permanently have infections and I had three bouts of pneumonia within a bit more of one year. Now an examination of the sputum showed that I have Pseudomonas within my bronchus. Kann this occur whith asthma also? How does such a colonisation with Pseudomonas happen? Many tests are being done at the moment. Is it possible that a person has asthma and cystic fibrosis at the same time? But in my age (I always had problems with my lung, but always asthma)? Is it possible that pseudomonas causes the frequent bouts of pneumonia? Also my lung function keeps being restricted. Greetings,
22.12.2008
Indication of ursodeoxycholic acid
Dear team, Is ursodeoxycholic acid prescribed in CF even if the liver value SGGT is always very good (9), while other liver values are slightly higher than usual since months? SGOT 41 (-35 norm), SGPT 48 (-45 norm), ALKP 140 (53 – 128 norm according to laboratory). Apart from that my liver is without pathological findings and disturbances. Many thanks in advance S. Gayer
22.12.2008
Information
In a family with a CF child that we are involved with as care givers, there are 4 cats and the parents are smokers. They claim this doesn’t matter. What’s your advice about this.
08.12.2008
Headache after cortisone therapy
Dear Expert Team, for some time now, I have been noticing that, after cortisone therapy, I get a headache that lasts for weeks. It usually goes away after about for weeks, but it is unbearable without pain killers. The initial dosage is usually 20 mg and the headache slowly starts at 10 mg and becomes really intense after the therapy. Could it perhaps be potassium deficiency? Also, I am always very shaky along with the headache. Therefore, last time a head CT was performed, but nothing was found. I hope you can help me or can give me some advice! Kind regards, a 34-year-old CF patient
08.12.2008
Children with special educational needs
Is a child with cystic fibrosis classified as a child with special educational needs and does this affect guidelines for integration into nursery schools?
06.12.2008
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