Topics

Baby does not gain weight (follow-up to an earlier question)
Dear expert team, I already asked a question about the issue „baby does not gain weight (being exclusively breastfed) on July 31, 2008. Thank you very much for your answer. Unfortunately since then the situation did not improve at all. On the contrary, he is growing thinner and thinner. In the meantime our now six months old son was in hospital again. He had bloody mucilaginous stools. The reason for this could not be found with 100 % certainty even after a colonoscopy. It is supposed that this was due to a CMV-Virus infection. Anyway, after some time the stools improved on their own. The former upper lobe atelectasis nearly disappeared. Only a small number of shades are still to be seen in the x-ray. He still coughs relatively often. Because of heavy coughing fits he vomits, especially after meals. That occurs several times a week. In the majority of cases he then does not continue to eat (drink), thus he misses a complete meal. Additionally his gall function is never correct although Ursofalk was increased up to 2.5 ml. Unfortunately he did not gain nearly any weight yet. Now, at the age of 6 months, he only weighs 5700 g. That is although he currently is drinking a bit better. We were advised to start supplementary food at the age of five months. This we did. We use the normal glasses of baby food you can buy and mix it with a bit of oil. Sometimes the purees are eaten in small quantities, sometimes absolutely refused. Apart from that he is still being breastfed, with each breastfed meal ( about 60 to 100 g) he now gets 3 ML Kreon for children. The breast milk was never examined (which you advised). Nor was the oesophagus examined – however, a ultrasonic examination of the abdomen was performed. In the CF-clinic we were told that the lacking weight gain is due to the many earlier problems he had. We think it there is a different reason, because currently he is sort of healthy and in a good temper. He is eating a bit more food, but all that does not seem to have any effect whatever. Sadly we feel that nobody can help us with the issue of lacking weight gain. With kind regards Roman K.
04.01.2009
Problem with urine
For several days Ola's urine has a very unpleasant odour, I can't see the colour, because she urinates very often with small amounts of urine. Tomorrow I will go to do urinalysis. The glucose level measured with glucometer before night rest is 97. She drinks a lot. Should I worry? Greetings, Ola's mother from Opole
04.01.2009
Pseudomonas fluorescens
Is intravenous antibiotic therapy necessary when Pseudomonas fluorescens is found in sputum of a CF patient? Is this type of Pseudomonas dangerous? Is the patient considered as colonised by pseudomonas? Thank you for your reply.
04.01.2009
Contagion
Dear Expert Team, I have an urgent question: my new girlfriend carries the Epstein virus and had a borreliosis infection from a tick one year ago. Now my question: is that dangerous for me as a CF patient? Can I contract the virus, or is it safe? I would appreciate a quick answer! Best wishes
04.01.2009
Contagion Part 2
Please see for the full question and answer "Contagion" in the Archive! Hello Dr. Smaczny, Thank you very much for your quick answer. But what about the Epstein virus, could this be dangerous for me? Thanks a lot, With kindest regards,
04.01.2009
inhalation
Hi, I use ACC for inhalation, but I have heartburn and stomach difficulties, so I wish to ask you for advice. What is the difference between dornase and acetylcystein? Do you think that I can start dornase? Thank you.
04.01.2009
Ribomunyl gra
Hi, does a justification exist for treatment of an infant (20months) by ribomunyl in order to support his immunity? Thank you for your reply.
04.01.2009
Stenotrophomonas
Dear Expert Team, My problem germs are mainly Staphylococcus, Haemophilus, sporadically Aspergillus, and currently also Stenotrophomonas. Over the past three weeks I have been feeling very sick and have had a lot of sputum and dry cough particularly at night, which has resulted in exhaustion and a high need for sleep. My doctors are now focusing on the Stenotrophomonas because they assume it to be the reason for my current ailment. However, since the Stenotrophomonas is always subliminally present everywhere, could it not also be the other bacteria? What I mean is that after the last antibiogram, only two antibiotics reacted positive to Stenotrophomonas. I tried Ciprofloxacine, which did not work, and Cefuroxime has not had a significant effect after the third day, either. Whenever Stenotrophomonas has not been detected, I have been prescribed Doxycycline and it has helped me very well. Also, I was sometimes able to convince my doctors to prescribe Doxycycline when it was presumed resistant to the existing germs [translator’s comment: patient probably meant that the germs were presumed resistant to the antibiotic]. If you are dealing with patients who are already in their mid-40s, should you as a physician not trust the patients’ sense of what helps and what does not help, and at least try it? After all, an antibiogram only provides support with the choice of antibiotic but does not ensure success in its application. As far as I know, Stenotrophomonas has not been researched enough to know what damage it does or does not cause. I was even advised to try an i.v. therapy, but with that, too, it is debatable whether it makes sense with this particular germ. I am almost ready to think about whether I will take this step, but I am also afraid of hospital germs. Many thanks.
22.12.2008
Statistics
Good afternoon, I would like ask you for an advice how I may acquire some statistical informations about cystic fibrosis. I study at Slovak Health University and I need this data for my health statistics semestral work. Thank you.
22.12.2008
Disability
Do disability is given after cystic fibrosis for child of 5 years old is diagnosed?
22.12.2008
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