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Tags
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
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- ENT
- general aspects
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- health care
- hepatobiliary disease
- hygiene
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- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
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Topics
- Air humidifiers for the home
- My baby (4 months old) has been diagnosed with CF. I'm wondering whether we should get a humidifier for his room to a) clear the air and b) increase the moisture in the air which may help his lungs...is this worthwhile? Do you have a point of view on getting an air purifier / filter versus getting a humidifier?
- 01.12.2008
- Clay
- Dear expert team, Is there any danger for a child in working with clay, such as making pottery because of different germs? Thank you very much for your question.
- 01.12.2008
- Increased airway resistance
- Dear expert, The lung function test of our son, 5 years old, always shows an increased to highly increased airways obstruction. Which measures (devices, perhaps Cornet) are appropriate? We use the flutter daily, RC cornet every now and then. Thank you for your information.
- 01.12.2008
- Lung Transplantation
- Good afternoon, three weeks ago, our baby son (8 weeks old) was diagnosed with Cystic Fibrosis after the values of his neonatal screening were increased – a nightmare!!! First examinations concluded that he is missing a pancreatic enzyme. He now has to take pancreatin, simethicone, a vitamin compound, and ACC juice. He is being breast-fed fully and has been gaining weight properly from the beginning. In addition, we are already supposed to do physiotherapy. And here comes my problem which keeps me awake at night: the physiotherapist told us that all CF patients will require a lung transplant at some point. Is there any truth to that statement? She also said that our son was short-winded and would therefore probably get oxygen through a nasal tube soon. The lung is not affected, though; our paediatrician and our CF doctor find the lung to be completely normal. How can the therapist make such a statement simply from looking at our son? We are very upset and obviously do not want to continue working with this therapist.
- 01.12.2008
- Articulation
- Is there a link between CF and problems with articulation?
- 01.12.2008
- Do CF patients run any risk when breeding wild birds?
- Hello! I am affected by Cystic Fibrosis. Since the beginning of this year I am on pension because of inability to work. I am thinking about taking care of wild birds next year which fell from their nests and need help. These have to be fed every two hours. My friend has been doing this for many years and would be very happy about a helping hand. Now I would like to know if these little nestlings might bear any sanitary risk (e.g. bird flu) which might be dangerous for persons with cystic fibrosis. I will not keep these birds in my home but in the conservatory where I will stay only to feed them. Thank you in advance for your answer.
- 01.12.2008
- Serratia
- Dear expert team, in my daughter’s throat swab (she has CF, 3 years old) the germ Serratia was detected. Which impact does this germ have on the lung function or the course of the disease? How likely is it to get rid of it ( the clinic prescribed an oral antibiotic)? Since the informational situation about this rare germ is meagre I am very grateful about every advice or expert knowledge. Greetings,
- 27.11.2008
- CF and kidney disease
- I would like to know what is known about kidney disease and CF. My daughter of 37 has CF and recently started on dialysis as well. She has a mild form of diabetes, injects 4IU per meal but has serious diabetic complaints. At first it was a mystery; she has been unexplainable very ill. Everything has been searched for, but without success. According to the nephrologist there are 4 patients in Australia with exactly the same complaints but mild or no diabetes at all. My question is whether there are more CF patients in the world with serious kidney disease; and is there any research in this field ?
- 27.11.2008
- CF Twin babies- medical care in another EU country?
- Hi, I have a case of CF in the family. These twin girls were diagnosed right after birth, and have had a rough first 6 months. The parents are a bit disappointed at the very sparse specialized care available in the country and are starting to consider getting the girls to some other country with a better health network. Is it possible for them to use the medical facilities in another EU country, and under which conditions would they be allowed to do that? Hope you can help. Thank you very much. Jose
- 27.11.2008
- CF and hepatitis
- Is it desirable to vaccinate a CF child against hepatitis? If yes, does it mean both types, A and B? What time of the year is suitable for this vaccination? Is it possible to vaccinate against flu between doses against hepatitis? Thank you for your reply.
- 27.11.2008
